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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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  • What is EJP RD?
    • Project structure
    • EJP RD Impact
    • Beneficiaries
    • Governance
    • Our publications
    • EJP RD Coordination Team
    • Careers
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  • Our actions and services
    • FUNDING OPPORTUNITIES
      • Open Funding Opportunities
      • Past Funding Opportunities
      • Funded projects
    • PATIENTS IN RESEARCH
    • VIRTUAL PLATFORM OF DATA AND RESOURCES
      • What is the virtual platform?
      • What do we do?
      • Resources for RD Research
      • FAIRification
      • Services and Events
    • TRAINING
      & EDUCATION
      • General Information on Training
      • RD Research Training
      • Patients Training
      • ERN Workshops
      • Online Academic Education Course
    • RESEARCH TRANSLATION SUPPORT OFFICE
      • Innovation Management Toolbox
      • Mentoring for Translational Research
      • Follow-on funding support
    • CLINICAL STUDIES SUPPORT OFFICE
      • Support office
      • Rare Diseases Clinical Trials Toolbox
      • Clinical Trials Methodology
    • ETHICS & REGULATORY ADVICE
      • Introduction to AREB
      • Key Ethics & Regulatory Documents
      • ERN Registries Generic Informed Consent Forms
  • News and events
    • News
    • EJP RD Events
    • Other RD Events
    • EJP RD Newsletter
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News

EJP RD - European Joint Programme on Rare Diseases - News and events - News
  • 12 Jun
  • 2019

EURORDIS Black Pearl Awards 2020: call for nominations

  • News

The EURORDIS Black Pearl Awards is an annual awards ceremony organised by EURORDIS-Rare Diseases Europe to recognise the major achievements […]

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  • 12 Jun
  • 2019

European Research and Innovation Days

  • News

European Research and Innovation Days is the first annual policy event of the European Commission, bringing together stakeholders to debate […]

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  • 12 Jun
  • 2019

TO-REACH consortium draft Strategic Research Agenda open for consultation

  • News

The draft Strategic Research Agenda (SRA) developed by the EU funded TO-REACH Consortium is now available for consultation. The SRA […]

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  • 12 Jun
  • 2019

EURORDIS position paper: Achieving Holistic Person-Centred Care to Leave No One Behind

  • News

On 17th May, EURORDIS launched a Position Paper on ‘Achieving Holistic Person-Centred Care to Leave No One Behind’, at the […]

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  • 12 Jun
  • 2019

Horizon Impact Award

  • News

The European Commission has launched the first Horizon Impact Award. This award recognise and celebrate outstanding projects that have used […]

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  • 09 May
  • 2019

“Organizing & maximizing rare disease biological sample data in biobanks” training course

  • News

The training, an acticity of the EJP RD WP14.4, took place on 1-2 April in Milan, Italy. The programme of […]

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Rare Disease Day 2019: today’s the day!

  • Posted on28 February 2019
  • News

The EJP RD partners are proud to participate in the Rare Disease Day 2019. For this special occasion, we mobilized […]

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EJP RD participates in the Rare Diseases 2019 campaign!

  • Posted on28 February 2019
  • News

We recently worked with Mediaplanet UK on the 2019 Rare Diseases Campaign! Read the interview where Dr. Daria Julkowska (scientific […]

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Latest Posts

  • RE(ACT) Congress & IRDiRC Conference held in Berlin [PRESS RELEASE]
  • Solve-RD Public Symposium: The Impact of Solve-RD on Research & Care of Rare Disease Patients
  • New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)
  • Training for patient representatives and advocates on leadership and communication skills
  • DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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