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Tag: networking

EJP RD - European Joint Programme on Rare Diseases - News and events - News - networking
  • 09 Feb
  • 2023

1st International CTNNB1 Syndrome Conference

  • EJP RD News, Networking events funded by EJP RD

A networking event, funded by EJP RD’s Networking Support Scheme, is being organised in Madrid, Spain on March 23rd-24th. This […]

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  • 09 Feb
  • 2023

EJP RD Networking Symposium: Complex genetics of inherited arrhythmias

  • EJP RD News, Networking events funded by EJP RD

This symposium on inherited arrhythmias is funded by the EJP-RD Networking Support Scheme and will take place in Amsterdam in […]

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  • 18 Jul
  • 2022

Networking Support Scheme (NSS) Event: Argonautes Syndrome Science & Family Conference

  • EJP RD News, Networking events funded by EJP RD

A funded networking event, the first Argonaute Syndrome Science & Family conference, is being organized to bring together patient families, […]

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  • 20 Jun
  • 2022

Networking Support Scheme (NSS) event: Taking congenital portosystemic shunts (CPSS) to the next level

  • Networking events funded by EJP RD, News

A funded networking event “Taking congenital portosystemic shunts (CPSS) to the next level – 2nd meeting of experts” is being […]

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  • 06 Jun
  • 2022

Networking Support Scheme (NSS) event: European meeting on Phelan-McDermid syndrome

  • EJP RD News, Networking events funded by EJP RD, News

A funded networking event “European meeting on Phelan-McDermid syndrome” is being organised to discuss the guideline recommendations and to strengthen […]

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  • 06 Jun
  • 2022

Networking Support Scheme (NSS) event: 2nd International Congress on Biliary Atresia and Related Diseases (BARD)

  • EJP RD News, Networking events funded by EJP RD, News

A funded networking event “2nd International Congress on Biliary Atresia and Related Diseases (BARD)” is being organised to offer access […]

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  • 06 Jun
  • 2022

Networking Support Scheme (NSS) event: 3rd International Symposium on Wiskott Aldrich Syndrome (WAS2022)

  • EJP RD News, News

A funded networking event “3rd International Symposium for Researchers and Clinicians on Wiskott Aldrich Syndrome (WAS2022)” is being organised to […]

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  • 25 Apr
  • 2022

Networking Support Scheme (NSS) event: TREAT AIE European Conference on Autoimmune Encephalitis

  • EJP RD News, News

A funded networking event “Treat AIE: First European networking conference to provide guidelines and improve treatment of Autoimmune Encephalitis” is […]

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  • 05 Apr
  • 2022

European Forum on Visceral Myopathy 2022

  • News

A funded networking event “European Forum on Visceral Myopathy 2022” is being organised in Camogli, Italy. This event has received […]

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  • 25 Mar
  • 2022

Networking Support Scheme (NSS) event: International Vasculitis Patient Conference 2022

  • EJP RD News, News

A funded networking event “International Vasculitis Patient Conference” is being organised as a satellite hybrid event to the 20th International ANCA Vasculitis […]

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Latest Posts

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  • Training for patient representatives and advocates on leadership and communication skills
  • DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)
  • International Women’s Day

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  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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