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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Tag: patient

EJP RD - European Joint Programme on Rare Diseases - News and events - News - patient
  • 18 Apr
  • 2022

STARTS TODAY! Third run of MOOC on Diagnosing Rare Diseases: From the Clinic to Research and back

  • EJP RD News, News

The third run of the MOOC (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” co-developed by the […]

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  • 08 Oct
  • 2021

EHDEN Academy offers patient/patient group course on Real World Data, Evidence & EHDEN

  • News

The European Health Data & Evidence Network (EHDEN) Consortium and the European Patients’ Forum (EPF) have jointly developed a free […]

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  • 27 Sep
  • 2021

IMI impact on patient involvement event

  • News

The Innovative Medicines Initiative (IMI) is organising a series of online live sessions on IMI’s Impact, where key actors will […]

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  • 09 Jul
  • 2021

EATRIS launches survey on Patient Engagement in Academic Research

  • News

The European Advanced Translational Research Infrastructure in Medicine (EATRIS) together with the European Patients Forum (EPF), the European AIDS Treatment […]

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  • 09 Jun
  • 2021

Share4Rare 1st open call for patient-driven research projects

  • News

The Share4Rare Project announces its 1st open call for patient-driven research projects targeted towards patient organisations and researchers in the field of rare diseases to apply for […]

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  • 20 May
  • 2021

World Duchenne Organization announces Duchenne Care Conference 2021

  • News

The World Duchenne Organization (WDO) is hosting an online Duchenne Care Conference intended for patients, family members, clinicians and others […]

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Latest Posts

  • RE(ACT) Congress & IRDiRC Conference held in Berlin [PRESS RELEASE]
  • Solve-RD Public Symposium: The Impact of Solve-RD on Research & Care of Rare Disease Patients
  • New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)
  • Training for patient representatives and advocates on leadership and communication skills
  • DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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