As part of the training activities proposed by EJP RD, an online training course on “Training on strategies to foster […]
Read MorePARIS, France and TUCSON, Ariz., U.S., February 1st, 2022: The European Joint Programme on Rare Diseases (EJP RD) announces a collaboration […]
Read MoreThe European Medicines Agency’s (EMA) Clinical Trials Information System (CTIS) has gone live as of January 31st. CTIS is the […]
Read MoreThe Therapies Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force on Drug Repurposing Guidebook to help developers (of […]
Read MoreThe Dravet Syndrome Foundation Spain works to improve the quality of life of people with Dravet syndrome and their families. […]
Read MoreAn EJP RD funded networking event on the rare neurological disease caused by anti-IgLON5 antibodies, discovered in 2014 by researchers […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) is proud to announce the publication of a commentary on 10 years of progress […]
Read MoreUpdate: Third International Summit on Human Genome Editing postponed to 2023 The UK Royal Society, Academy of Medical Sciences, the […]
Read MoreThe Therapies Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force to characterize specific commonalities amongst a large group […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) has published the results of its COVID-19 survey in the Rare Disease and Orphan Drugs Journal. […]
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