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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Tag: ERN

EJP RD - European Joint Programme on Rare Diseases - News and events - News - ERN
  • 07 Apr
  • 2023

New training: ERN biological samples in Rare Diseases research: Added value and usefulness

  • EJP RD News, ERN-Research (ERICA)

A new EJP RD training course called “ERN Biological Samples in Rare Diseases Research” is set to take place on […]

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  • 22 Mar
  • 2023

New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a workshop on “on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and […]

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  • 15 Feb
  • 2023

Webinar: Primary Obstructive Megaureter (POM): Predictors of Success and Failure after Balloon Dilatation

  • ERN-Research (ERICA), News

ERN eUROGEN and ERNICA are organising a 1-hour webinar entitled “Primary Obstructive Megaureter (POM): Predictors of Success and Failure after […]

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  • 08 Feb
  • 2023

ERN Webinar: Patients with Trisomy 21 and ARM Versus Patients with ARM Without Fistula

  • ERN-Research (ERICA)

ERN eUROGEN are organising a webinar dedicated to healthcare professionals and patient groups on Wednesday, 8 February at 18:00 CET. […]

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  • 23 Jan
  • 2023

New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a workshop entitled “Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary […]

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  • 06 Dec
  • 2022

EJP RD – ERN Workshop: RARE TOGETHER

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: RARE TOGETHER” is being organized by Dr Rosanne Smits […]

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  • 23 Nov
  • 2022

EJP RD – ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies” […]

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  • 21 Sep
  • 2022

ERN EURO-NMD : 4th Neuromuscular Translational School coming soon

  • News

The 4th edition of the Neuromuscular Translational School organized by EURO-NMD and TREAT-NMD will take place in autumn this year […]

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  • 02 Sep
  • 2022

ERN eUROGEN webinar: Proximal Hypospadias: Challenges in Surgical Management

  • News

ERN eUROGEN is happy to announce their upcoming webinar, titled “Proximal Hypospadias: Challenges in Surgical Management”. Surgical management of proximal […]

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  • 01 Sep
  • 2022

ERN Research Training Workshops funding opportunity now open for applications

  • EJP RD News

The ERN Research Training Workshops funding opportunity is now open for applications until October 1st. The goal of the workshops is to train researchers and clinicians affiliated […]

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Latest Posts

  • New ERN Workshop: CDH1 related hereditary diffuse type gastric cancer: the shift from prophylactic total gastrectomy to optimal endoscopic surveillance
  • New ERN Workshop: Advances in regenerative medicine and tissues engineering for rare musculoskeletal diseases
  • Virtual Open Office on IMPC Mouse Production
  • New EJP RD Training: Replicated N-of-1 RCTs for Rare Diseases
  • Solve-RD Policy Statement: “TIME TO ACT – IMPROVING RARE DISEASE DIAGNOSIS AND SOLVING THE UNSOLVED RARE DISEASE THROUGH COLLABORATION IN EUROPE“

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  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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