Skip to content
EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
x
  • What is EJP RD?
    • Project structure
    • EJP RD Impact
    • Beneficiaries
    • Governance
    • Our publications
    • EJP RD Coordination Team
    • Careers
    • Privacy policy
  • Our actions and services
    • FUNDING OPPORTUNITIES
      • Open Funding Opportunities
      • Past Funding Opportunities
      • Funded projects
    • PATIENTS IN RESEARCH
    • VIRTUAL PLATFORM OF DATA AND RESOURCES
      • What is the virtual platform?
      • What do we do?
      • Resources for RD Research
      • FAIRification
      • Services and Events
    • TRAINING
      & EDUCATION
      • General Information on Training
      • RD Research Training
      • Patients Training
      • ERN Workshops
      • Online Academic Education Course
    • RESEARCH TRANSLATION SUPPORT OFFICE
      • Innovation Management Toolbox
      • Mentoring for Translational Research
      • Follow-on funding support
    • CLINICAL STUDIES SUPPORT OFFICE
      • Support office
      • Rare Diseases Clinical Trials Toolbox
      • Clinical Trials Methodology
    • ETHICS & REGULATORY ADVICE
      • Introduction to AREB
      • Key Ethics & Regulatory Documents
      • ERN Registries Generic Informed Consent Forms
  • News and events
    • News
    • EJP RD Events
    • Other RD Events
    • EJP RD Newsletter
  • Helpdesk

Tag: OMP regulation

EJP RD - European Joint Programme on Rare Diseases - News and events - News - OMP regulation
  • 26 Oct
  • 2021

World Orphan Drug Congress 2021: Strategy, advocacy and partnering for the orphan drug industry

  • News

The World Orphan Drug Congress organised by Terrapinn is a global, multi-stakeholder orphan drugs & rare diseases meeting that aims […]

Read More
  • 08 Oct
  • 2021

EURORDIS announces 32nd Round Table of Companies Workshop

  • News

EURORDIS Rare Diseases Europe is organising its 32nd Round Table of Companies (ERTC) workshop on the theme of “The impact […]

Read More
  • 03 Sep
  • 2021

CeBIL Annual Symposium 2021 – Orphan Drug Innovation: Needs and Priorities

  • News

The Centre for Advanced Studies in Biomedical Innovation Law (CeBIL) at the University of Copenhagen and the University of Cambridge’s […]

Read More
  • 13 Jul
  • 2021

National Organization for Rare Disorders (NORD) organises Rare Breakthrough Summit 2021

  • News

The National Organization for Rare Diseases (NORD) is organising its annual NORD Summit 2021, one of the largest multi-stakeholder events […]

Read More
  • 13 Jul
  • 2021

Virtual Round Table: The future of rare diseases in Europe

  • News

The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table discussion on the theme of the future […]

Read More
  • 08 Jun
  • 2021

Orphan Drug Expert Group Webinar: Addressing the unmet needs of rare disease patients

  • News

The European Expert Group on Orphan Drug Incentives (OD Expert Group), in collaboration with media partner EURACTIV, is organising a webinar on […]

Read More
  • 14 May
  • 2021

European Commission launches public consultation on the Orphan and Paediatric Regulations

  • News

As part of its review of the Orphan and Paediatric Regulations announced in 2020, the European Commission (EC) has launched […]

Read More
  • 22 Apr
  • 2021

RARE Conversations Webinar on Research In Rare Diseases: Specificities And Needs

  • News

Alexion’s Rare Conversations invites you for its third webinar (Take Three) on Research In Rare Diseases: Specificities and Needs. The […]

Read More

Search

Categories

  • EJP RD News
  • ERN-Research (ERICA)
  • Networking events funded by EJP RD
  • News
  • Uncategorized

Popular Tags

biobank clinical research clinical trial conference data sharing diagnostics drug repurposing duchenne EJPRD ema ERICA ERN ern research training workshops european commission EURORDIS event FAIR fda funding funding opportunity gene therapies genomics health data innovation irdirc MOOC networking networking event networking support scheme NSS OMP regulation open call orphan drugs paediatric patient patients rare diseases registry report survey symposium training virtual event webinar workshop

Latest Posts

  • New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach
  • Satisfaction Survey for EJP RD services
  • Training on Strategies to Foster Solutions of Undiagnosed Rare Disease Cases: Registration Open
  • AFM-Téléthon launches Scientific and Medical Research Call for Proposals for 2023
  • EJP RD Joint Transnational Call 2023: Now Open!

Featured Links

  • Helpdesk
  • Sitemap
  • Careers

Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

© Copyright EJP RD.
×
You must be logged in before using WishList. To login click here