The Innovative Health Initiative (IHI) is organising a series of live sessions on Innovative Medicines Initiatives (IMI) Impact, where key […]
Read MoreThe 16th Genomics of Rare Disease Conference is being organized a virtual event targeted towards professionals in genomics research and clinical […]
Read MoreThe 11th European Conference on Rare Diseases and Orphan Products (ECRD) 2022 is being organized by EURORDIS and co-organized by Orphanet, with […]
Read MoreIn the context of EJP RD’s ERN Workshops, a face-to-face training course on “Ectodermal dysplasias: Training course and update” aimed at informing and training participants […]
Read MoreIn the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “From high throughput sequencing to diagnosis in immune mediated disorders” aimed at educating young […]
Read MoreA funded networking event titled “European Dravet Syndrome Advanced Therapies Meeting (EDSAT)” is being organised so that scientists can share first-hand information […]
Read MoreThe board game FAIRopoly developed by EJP RD illustrates the FAIRification steps followed by the ERNs registries to make their […]
Read MoreOn February 25th, a new Rare Care Centre was launched in Australia, which will provide a holistic model of care for […]
Read MoreAs part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership […]
Read MoreAs part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of […]
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