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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Tag: duchenne

EJP RD - European Joint Programme on Rare Diseases - News and events - News - duchenne
  • 15 Nov
  • 2022

Submit a poster for Duchenne Patient Academy 2022

  • News

Do you have an innovative or breakthrough project related to the Duchenne field that you wish to share with the […]

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  • 05 Oct
  • 2022

World Duchenne Organization announces Accredited Duchenne Centers Program (Press release)

  • News

The World Duchenne Organization is pleased to announce the launch of the Accredited Duchenne Centers Program. This global program is […]

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  • 20 Jul
  • 2022

6th Duchenne Patient Academy 2022: Changing Perspective

  • News

The Duchenne Data Foundation is pleased to invite you to the 6th edition of the Duchenne Patient Academy, of which […]

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  • 24 Aug
  • 2021

Online event on Adult Life & Duchenne

  • News

The World Duchenne Organization is organizing an online educational event on Adult Life & Duchenne. The free event on September 7 […]

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  • 20 May
  • 2021

World Duchenne Organization announces Duchenne Care Conference 2021

  • News

The World Duchenne Organization (WDO) is hosting an online Duchenne Care Conference intended for patients, family members, clinicians and others […]

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  • 20 Apr
  • 2021

Share4Rare webinar for neuromuscular diseases (NMD) patients and caregivers

  • News

Share4Rare, in collaboration with the World Duchenne Organization and the John Walton Muscular Dystrophy Research Centre, is hosting a webinar […]

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Latest Posts

  • New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach
  • Satisfaction Survey for EJP RD services
  • Training on Strategies to Foster Solutions of Undiagnosed Rare Disease Cases: Registration Open
  • AFM-Téléthon launches Scientific and Medical Research Call for Proposals for 2023
  • EJP RD Joint Transnational Call 2023: Now Open!

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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