The World Duchenne Organization is organising the Duchenne Care Conference 2023. This online conference is taking place on June 7 and 8 from 15:00 – 18:00 CEST. This conference provides a unique opportunity for healthcare professionals and patient organizations around the world to connect and learn from the latest insights on Duchenne care in a…
World Duchenne Organization is thrilled to announce that the applications for Duchenne Centers Accreditation are now open. The Accredited Duchenne Centers Program is designed to achieve worldwide uniform and up-to-date care for everyone living with Duchenne muscular dystrophy. Accredited Duchenne Centers provide comprehensive care according to the international care considerations and consensus guidelines. The program…
Do you have an innovative or breakthrough project related to the Duchenne field that you wish to share with the global community? Submit an E-Poster abstract for the 2022 edition of Duchenne Patient Academy. Selected authors will be invited to present their E-Poster during the event taking place on December 1. The poster session will…
The World Duchenne Organization is pleased to announce the launch of the Accredited Duchenne Centers Program. This global program is part of the unique development of a worldwide accreditation for Duchenne Centers. It consists of an ongoing development of the process of criteria and visitation leading to the right to be named an Accredited Duchenne…
The Duchenne Data Foundation is pleased to invite you to the 6th edition of the Duchenne Patient Academy, of which the theme is « Changing Perspectives ». The conference aims to inspire and equip patient advocates to become change makers and build a better future for people living with dystrophinopathies. The Academy provides online training for Duchenne…
The World Duchenne Organization is organizing an online educational event on Adult Life & Duchenne. The free event on September 7 will be accessible for everybody via Zoom, and is available with live Spanish interpretation. Speakers include Prof. Ros Quinlivan, Dr. Jos Hendriksen, Nicoletta Madia, Elizabeth Vroom and Hlawulani Mkhabela. Apart from these, Duchenne adults from…
The World Duchenne Organization (WDO) is hosting an online Duchenne Care Conference intended for patients, family members, clinicians and others involved in the care of individuals affected by Duchenne and Becker Muscular Dystrophy. The online conference will take place over four evening sessions of 2.5 hours each on June 1–4, 2021. The conference will provide simultaneous interpretation in various…
Share4Rare, in collaboration with the World Duchenne Organization and the John Walton Muscular Dystrophy Research Centre, is hosting a webinar for families who want to join the Share4Rare research pilot. This research project focuses on how being or caring for a person with neuromuscular diseases (NMD) affects learning & work opportunities. The event will take…