The EJP RD is proud to announce that the Smart Guidance tool for the FAIRification of rare disease registries was […]
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The International Rare Diseases Research Consortium (IRDiRC) is proud to announce that the commentary on 10 years of progress and […]
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London, UK – July 2022: The RDNN Board of Trustees and Management is delighted to announce the recent registration of […]
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Following the 11th European Conference on Rare Diseases and Orphan Products (ECRD) that was held from June 27th to July 1st and […]
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The European, Middle Eastern & African Society for Biopreservation and Biobanking (ESBB) and BBMRI-ERIC are organising the Europe Biobank Week […]
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The European Medicines Agency (EMA) has recommended a conditional marketing authorisation in the European Union (EU) for Tecvayli (teclistamab), a monoclonal antibody […]
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The pre-announcement of the CHIST-ERA Call ORD is online! It will target R&D projects in the following topic: “Open & […]
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The Duchenne Data Foundation is pleased to invite you to the 6th edition of the Duchenne Patient Academy, of which […]
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A funded networking event, the first Argonaute Syndrome Science & Family conference, is being organized to bring together patient families, […]
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A new, free-of-charge webinar in collaboration with the AAAS/Science magazine is available on demand since July 9th. This webinar broadcasted […]
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