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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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    • FUNDING OPPORTUNITIES
      • Open Funding Opportunities
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    • PATIENTS IN RESEARCH
    • VIRTUAL PLATFORM OF DATA AND RESOURCES
      • What is the virtual platform?
      • What do we do?
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    • TRAINING
      & EDUCATION
      • General Information on Training
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    • RESEARCH TRANSLATION SUPPORT OFFICE
      • Innovation Management Toolbox
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    • CLINICAL STUDIES SUPPORT OFFICE
      • Support office
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      • Clinical Trials Methodology
    • ETHICS & REGULATORY ADVICE
      • Introduction to AREB
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News

EJP RD - European Joint Programme on Rare Diseases - News and events - News
  • 08 Feb
  • 2023

ERN Webinar: Patients with Trisomy 21 and ARM Versus Patients with ARM Without Fistula

  • ERN-Research (ERICA)

ERN eUROGEN are organising a webinar dedicated to healthcare professionals and patient groups on Wednesday, 8 February at 18:00 CET. […]

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  • 06 Feb
  • 2023

Call for Members : 2023 IRDiRC Task Forces

  • News

IRDiRC launches the Call for Members for the four new Task Forces of the 2023 Roadmap. Check out the newly approved Task […]

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  • 23 Jan
  • 2023

New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a workshop entitled “Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary […]

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  • 16 Jan
  • 2023

Satisfaction Survey for EJP RD services

  • EJP RD News

The European Joint Programme on Rare Diseases (EJP RD) - Work Package 19 (WP19: “Facilitating partnerships and accelerating translation for higher […]

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  • 16 Jan
  • 2023

Training on Strategies to Foster Solutions of Undiagnosed Rare Disease Cases: Registration Open

  • EJP RD News

As part of the training activities proposed by EJP RD, an 3-day training course on “Training on strategies to foster solutions of undiagnosed […]

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  • 15 Dec
  • 2022

AFM-Téléthon launches Scientific and Medical Research Call for Proposals for 2023

  • News

AFM Téléthon (France) launches a scientific call for proposals for 2023, open both to French and foreign teams. The aim is to support: Fundamental […]

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  • 12 Dec
  • 2022

EJP RD Joint Transnational Call 2023: Now Open!

  • EJP RD News

The  European Joint Programme on Rare Diseases launches today the Joint Transnational Call 2023, a funding opportunity for research projects on the development of new […]

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  • 09 Dec
  • 2022

SAVE THE DATE: 4th eNMD Congress

  • News

The 4th eNMD conference will be held on 19-21 October 2023 in Munich. Visit the event’s website to get updated on […]

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  • 08 Dec
  • 2022

European Union (EU) Health Summit – Rare Diseases Moonshot launch

  • EJP RD News

Join us on 8th December for the European Health Summit that will take place in Brussels (Belgium) and online to find out more about our journey […]

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  • 06 Dec
  • 2022

EJP RD – ERN Workshop: RARE TOGETHER

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: RARE TOGETHER” is being organized by Dr Rosanne Smits […]

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Latest Posts

  • RE(ACT) Congress & IRDiRC Conference held in Berlin [PRESS RELEASE]
  • Solve-RD Public Symposium: The Impact of Solve-RD on Research & Care of Rare Disease Patients
  • New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)
  • Training for patient representatives and advocates on leadership and communication skills
  • DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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