Topic: Anonymisation and pseudonymisation of rare disease patients: legal and technical aspects Date and Time: December 15th, 2021 from 15.00 – 16.00 […]
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EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and […]
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Rare Disease Ghana Initiative (RDGI), in partnership with Rare Diseases International (RDI), is organising the first African Summit on Rare […]
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The AKU Society, a UK-based charity, has launched a crowdfunding campaign to raise funds for “Leave No Patient Behind – […]
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The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and […]
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We are glad to pre-announce the Joint Transnational Call 2022, a funding opportunity for research projects on the development of […]
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The Fondazione Gianni Benzi is organizing the XIV Foresight Training Course (FTC) on the theme of “The health emergency: Regulatory […]
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The 1st International Conference on Rare Diseases and Paediatric Research is being organized by 95, Rare Alliance Greece together with […]
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VASCERN will hold a webinar on Tuesday November 23rd, 2021 from 5pm to 6pm (CET) entitled: Diagnostic and Management Pathway for Severe and/or […]
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The European Medicines Agency (EMA) has announced the publication of a guideline on registry-based studies following its adoption by the […]
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