The International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on Rare Diseases (EJP RD) are jointly organizing […]
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IRDiRC is delighted to share the release of Connecting the dots: Embedding progress on rare disease into healthcare, an Economist […]
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The World Duchenne Organization is pleased to announce that the WDO Leadership Award, the highest recognition for individual achievement, was […]
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As a continuation of the funding of an EJP RD NSS call, ECRIN is holding a two-day workshop and networking […]
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IRDiRC, a global collaborative initiative with the vision to enable all people living with a rare disease to receive an […]
Read MoreEJP RD held its annual General Assembly and Consortium Meeting on 13-15 September 2022 in Porto, Portugal. The event gathered […]
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EURORDIS is delighted to announce that applications for the 2023 edition of the EURORDIS Open Academy Schools are now open. […]
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The 4th edition of the Neuromuscular Translational School organized by EURO-NMD and TREAT-NMD will take place in autumn this year […]
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EJP RD is delighted to announce an upcoming webinar on “The Statistical Evaluation of Surrogate Endpoints in Clinical Trials” which […]
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The French Foundation for Rare Diseases is delighted to announce the upcoming opening of a new facilitation window of the MOOC “Diagnosis Rare […]
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