European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy

As part of Solve-RD, Solving the unsolved rare diseases, a European project H2020 on genetic research, the Health Economics Team of the Economics Laboratory of Dijon (University of Burgundy) organises the “European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy” from May 26th to 28th, 2021. You will find the programme here. Registration is open here. More […]

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WANTED: Your View on Networking (Survey)

What are your wishes and needs for networking? And how is this changed due to the COVID-19 pandemic? We are eager to hear your view! Complete the survey here to help us improve the Networking Support Scheme, the EJP RD funding opportunity for networking. Please note: if you are a principal applicant or an evaluator […]

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Call for expression of interest – Data Standards Strategy survey and workshop

The Big Data Steering Group has launched an initiative to develop a Data Standards Strategy that will enable the Network to more effectively leverage data to deliver evidence in support of benefit-risk decision-making on the development, authorisation and use of medicines.  If you are part of Patients’ & Healthcare Professionals’ organisations or a Learned Societies, the European […]

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RDCA-DAP Professional Webinar Series: Value of Integrated Data and Analytics in Rare Disease Drug Development

The Rare Disease Cures Accelerator–Data and Analytics Platform is launching a new webinar series with the goal of sharing with the community examples of the use of rare disease person-level data in drug development and regulatory decision making. The series will feature 1-hour webinars highlighting analyses that have been done in individual disease areas, how […]

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1st International Conference on Rare Diseases – Press Release

The 1st International Conference on Rare Diseases was held on the 1st and 2nd of March online. The event was a great success and was attended by more than 650 participants from 37 countries around the world (Europe, USA and Asia) including health professionals, researchers, academics, policy makers, industry representatives and patients. For the first […]

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