The General Assembly of TEDDY Network will be held online, within a hearing at the Council of Europe this July […]
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As part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership […]
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Following a sustained campaign by rare disease patient advocacy organisations such as Rare Diseases International and with the support of […]
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The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and […]
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