Skip to content
EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
x
  • What is EJP RD?
    • Project structure
    • EJP RD Impact
    • Beneficiaries
    • Governance
    • Our publications
    • EJP RD Coordination Team
    • Careers
    • Privacy policy
  • Our actions and services
    • FUNDING OPPORTUNITIES
      • Open Funding Opportunities
      • Past Funding Opportunities
      • Funded projects
    • PATIENTS IN RESEARCH
    • VIRTUAL PLATFORM OF DATA AND RESOURCES
      • What is the virtual platform?
      • What do we do?
      • Resources for RD Research
      • Services and Events
    • TRAINING
      & EDUCATION
      • General Information on Training
      • RD Research Training
      • Patients Training
      • ERN Workshops
      • Online Academic Education Course
    • RESEARCH TRANSLATION SUPPORT OFFICE
      • Innovation Management Toolbox
      • Mentoring for Translational Research
      • Follow-on funding support
    • CLINICAL STUDIES SUPPORT OFFICE
      • Support office
      • Rare Diseases Clinical Trials Toolbox
    • ETHICS & REGULATORY ADVICE
      • Introduction to AREB
      • Key Ethics & Regulatory Documents
      • ERN Registries Generic Informed Consent Forms
  • News and events
    • News
    • EJP RD Events
    • Other RD Events
    • EJP RD Newsletter
  • Helpdesk

News

EJP RD - European Joint Programme on Rare Diseases - News and events - News
  • 09 May
  • 2022

ERICA new matchmaking tool: Collaborative inter-ERN Research Wall

  • News

ERICA aims to promote collaborative inter- ERNs research projects. It is therefore crucial to have a centralised location to announce any […]

Read More
  • 06 May
  • 2022

Global Survey on the Journey to Diagnosis for Persons Living with a Rare Disease

  • News

RDI is partnering with the EURORDIS Rare Barometer Survey project to launch the Global Survey on the Journey to Diagnosis […]

Read More
  • 04 May
  • 2022

GA4GH: Seeking feedback on Data Access Committee procedures

  • News

The GA4GH Data Access Committee Review Standards subgroup has put together a brief survey on implementation factors when using software or […]

Read More
  • 02 May
  • 2022

ERN Research Mobility Fellowships call opens today!

  • EJP RD News, News

EJP RD is glad to announce today (May 2nd) the opening of the call for Research Mobility Fellowships, which aims […]

Read More
  • 25 Apr
  • 2022

Networking Support Scheme (NSS) event: TREAT AIE European Conference on Autoimmune Encephalitis

  • EJP RD News, News

A funded networking event “Treat AIE: First European networking conference to provide guidelines and improve treatment of Autoimmune Encephalitis” is […]

Read More
  • 18 Apr
  • 2022

STARTS TODAY! Third run of MOOC on Diagnosing Rare Diseases: From the Clinic to Research and back

  • EJP RD News, News

The third run of the MOOC (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” co-developed by the […]

Read More
  • 13 Apr
  • 2022

Share4Rare webinar: Medical imaging in rare disease diagnosis

  • News

The Share4Rare Consortium is organising a webinar to discuss the potential of clinical imaging in rare disease diagnosis and research. The guest speaker will […]

Read More
  • 13 Apr
  • 2022

TEHDAS identifies funding options for secondary use of health data

  • News, Uncategorized

A recent report of the joint action Towards the European Health Data Space (TEHDAS) examines EU-level and national funding for health […]

Read More
  • 13 Apr
  • 2022

TEHDAS suggests minimum technical services for European health data space

  • News

A recent report of the joint action Towards the European Health Data Space (TEHDAS) identifies a minimum set of technical […]

Read More
  • 08 Apr
  • 2022

NIH/FDA Virtual Workshop on Regulatory Fitness in Rare Disease Clinical Trials

  • News

The National Institutes of Health (NIH), National Center for Advancing Translational Sciences (NCATS) and the U.S. Food and Drug Administration (FDA), Center for […]

Read More
  • 1
  • 2
  • 3
  • 4
  • ...
  • 39

Search

Categories

  • EJP RD News
  • Networking events funded by EJP RD
  • News
  • Uncategorized

Popular Tags

clinical research clinical trial conference congress data sharing dravet syndrome drug repurposing EJPRD ema ERN ern research training workshops european commission EURORDIS FAIR fda funding funding opportunity gene therapies genomics health data IHI IMI innovation irdirc JTC2022 MOOC networking networking event networking support scheme NSS OMP regulation open call orphan drugs paediatric patient patients rare diseases report survey symposium task force training virtual event webinar workshop

Latest Posts

  • SAVE THE DATE: RE(ACT) Congress and IRDiRC Conference 2023
  • Innovative Health Initiative (IHI) announces Kick-off and brokerage event
  • EC organises EU–Africa Pharma and Healthcare Marketplace and Matchmaking events
  • Rare Diseases Research (RDR) Challenge #4: Development of a novel pre-clinical assay (TRXassay) to detect triplet repeat expansions
  • EJP RD Training Workshop: Genetic Biobanks for rare disease research

Featured Links

  • Helpdesk
  • Sitemap
  • Careers

Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

© Copyright EJP RD.
×
You must be logged in before using WishList. To login click here