ERICA aims to promote collaborative inter- ERNs research projects. It is therefore crucial to have a centralised location to announce any […]
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RDI is partnering with the EURORDIS Rare Barometer Survey project to launch the Global Survey on the Journey to Diagnosis […]
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The GA4GH Data Access Committee Review Standards subgroup has put together a brief survey on implementation factors when using software or […]
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EJP RD is glad to announce today (May 2nd) the opening of the call for Research Mobility Fellowships, which aims […]
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A funded networking event “Treat AIE: First European networking conference to provide guidelines and improve treatment of Autoimmune Encephalitis” is […]
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The third run of the MOOC (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” co-developed by the […]
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The Share4Rare Consortium is organising a webinar to discuss the potential of clinical imaging in rare disease diagnosis and research. The guest speaker will […]
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A recent report of the joint action Towards the European Health Data Space (TEHDAS) examines EU-level and national funding for health […]
Read MoreA recent report of the joint action Towards the European Health Data Space (TEHDAS) identifies a minimum set of technical […]
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The National Institutes of Health (NIH), National Center for Advancing Translational Sciences (NCATS) and the U.S. Food and Drug Administration (FDA), Center for […]
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