As one of the joint undertakings under Horizon Europe, a draft Strategic Research & Innovation Agenda (SRIA) for the Innovative […]
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As part of the training activities proposed by the EJP RD, a 3-day training course titled “Quality assurance, variant interpretation […]
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As part of the training activities proposed by the EJP RD, the International Summer School on Rare Disease Registries and […]
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The French Foundation for Rare Diseases (FFRD) in parternship with Association contre les Maladies Mitochondriales (AMMi) are supporting and stimulating […]
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The Eva Luise and Horst Köhler Foundation in Germany, which has been committed to research into rare diseases since 2008, […]
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EJP RD is organising an integrative research and innovation strategy meeting on the theme of alignment of national rare disease […]
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The European Research Network for rare skin diseases (ERN-Skin) is launching a series of scientific webinars on rare skin diseases. […]
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The European Bank for induced pluripotent Stem Cells (EBiSC) is a non-profit induced pluripotent stem cell (iPSC) repository based in Germany […]
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The Share4Rare Project announces its 1st open call for patient-driven research projects targeted towards patient organisations and researchers in the field of rare diseases to apply for […]
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The European Expert Group on Orphan Drug Incentives (OD Expert Group), in collaboration with media partner EURACTIV, is organising a webinar on […]
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