All ERNs are tasked to set up patient registries that follow the FAIR Principles, as these ‘FAIR registries’ are essential […]
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[PRESS RELEASE] The Critical Path Institute (C-Path), an independent nonprofit organisation, and Pulse Infoframe, a real-world evidence generation, health informatics […]
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The European Medicines Agency (EMA) is organising a webinar for small and medium enterprises (SMEs) and academia on the Clinical […]
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EJP RD is co-organising the “Rare Conversations – European Rare Disease Ecosystem: A Collaborative Path Forward” conference in cooperation with Alexion, EURORDIS, EUCOPE, […]
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The deadline for the EJP RD ERN Research Training Workshops funding opportunity has been extended to October 22nd. The goal of the workshops is to […]
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The European Health Data & Evidence Network (EHDEN) Consortium and the European Patients’ Forum (EPF) have jointly developed a free […]
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The EHDEN Consortium announces its 5th Open call targeted towards data custodians of Electronic Health Records, Claims, Hospital and Registry data across Europe, supporting the mapping of […]
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EURORDIS Rare Diseases Europe is organising its 32nd Round Table of Companies (ERTC) workshop on the theme of “The impact […]
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The Food and Drug Administration’s (FDA) Office of Orphan Products Development (OOPD) is pleased to announce availability of funds for […]
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Primary Care Task Force on “Identifying Key Challenges and Opportunities to Advance IRDiRC Goals with Focus on Primary Care” The IRDiRC […]
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