On September 16th 2019, a workshop “Rare disease perspectives in Central – Eastern Europe”, twinned to the General Assembly of […]
Read MoreEMA’s human medicines committee (CHMP) has recommended the authorisation of Palynziq (pegvaliase), a new medicine for patients aged 16 and […]
Read MoreA new EURORDIS-led article, “Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on […]
Read MoreNew Frontier Research – Health article by Horizon Magazine on a video at nanometre resolution -first time ever-, where scientists […]
Read MoreThe success of European research missions, which aim to stimulate innovation to solve major societal problems, will require a complete […]
Read MoreA call for application for the preparation of EPTRI feasibility studies has been launched.Feasibility studies are aimed to test the process, the […]
Read MorePatients Active in Research and Dialogues for an Improved Generation of Medicines WP1 – Defining stakeholders’ preferences, needs and expectations […]
Read MoreEJP-RD is a multifaceted program aimed at supporting Rare Disease (RD) research in every possible way. This include funding of primary research, networking […]
Read MoreEU-OPENSCREEN is launching its first open calls for research proposals. The calls were both extended until September 30th, 2019 20:00 […]
Read MoreThe Chan Zuckerberg Initiative (CZI) is launching the Rare As One Project to lift up the work that patient communities […]
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