New article on transparent evaluations of FAIRness

The newly published article on transparent evaluations of FAIRness that is increasingly required by a wide range of stakeholders, from scientists to publishers, funding agencies and policy makers, “Evaluating FAIR maturity through a scalable, automated, community-governed framework”, shed a light on a scalable, automatable framework to evaluate digital resources that encompasses measurable indicators, open source […]

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EURORDIS Black Pearl Awards 2020: call for nominations

The EURORDIS Black Pearl Awards is an annual awards ceremony organised by EURORDIS-Rare Diseases Europe to recognise the major achievements and outstanding commitment of patient advocates, patient organisations, policy makers, scientists, companies and media who strive to make a difference for the rare disease community. Nominations for the EURORDIS Black Pearl Awards 2020 are open […]

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European Research and Innovation Days

European Research and Innovation Days is the first annual policy event of the European Commission, bringing together stakeholders to debate and shape the future research and innovation landscape. Speakers will include ministers, commissioners, members of European Parliament, researchers, as well as surprise guests each day. The event will be central to finding research and innovation […]

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Horizon Impact Award

The European Commission has launched the first Horizon Impact Award. This award recognise and celebrate outstanding projects that have used their results to provide value for society. The award aims to show the wider socio-economic benefits of EU investment in research and innovation. The award enables individuals or teams to showcase their best practices and […]

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Rare Disease Day 2019: today’s the day!

The EJP RD partners are proud to participate in the Rare Disease Day 2019. For this special occasion, we mobilized everyone and asked them to show their rare, and they did! What about you?

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EJP RD participates in the Rare Diseases 2019 campaign!

We recently worked with Mediaplanet UK on the 2019 Rare Diseases Campaign! Read the interview where Dr. Daria Julkowska (scientific coordinator of the EJP RD) speaks about how the European Joint Programme on Rare Diseases can help turbo-charge the research for the benefits of patients.

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