Skip to content
EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
x
  • What is EJP RD?
    • Project structure
    • EJP RD Impact
    • Beneficiaries
    • Governance
    • Our publications
    • EJP RD Coordination Team
    • Careers
    • Privacy policy
  • Our actions and services
    • FUNDING OPPORTUNITIES
      • Open Funding Opportunities
      • Past Funding Opportunities
      • Funded projects
    • PATIENTS IN RESEARCH
    • VIRTUAL PLATFORM OF DATA AND RESOURCES
      • What is the virtual platform?
      • What do we do?
      • Resources for RD Research
      • Services and Events
    • TRAINING
      & EDUCATION
      • General Information on Training
      • RD Research Training
      • Patients Training
      • ERN Workshops
      • Online Academic Education Course
    • RESEARCH TRANSLATION SUPPORT OFFICE
      • Innovation Management Toolbox
      • Mentoring for Translational Research
      • Follow-on funding support
    • CLINICAL STUDIES SUPPORT OFFICE
      • Support office
      • Rare Diseases Clinical Trials Toolbox
    • ETHICS & REGULATORY ADVICE
      • Introduction to AREB
      • Key Ethics & Regulatory Documents
      • ERN Registries Generic Informed Consent Forms
  • News and events
    • News
    • EJP RD Events
    • Other RD Events
    • EJP RD Newsletter
  • Helpdesk

News

EJP RD - European Joint Programme on Rare Diseases - News and events - News
  • 08 Apr
  • 2020

Building a data strategy for the European Reference Networks – A EURORDIS contribution

  • News

EURORDIS has launched a new contribution on ERNs and health data to trigger a strategic discussion on health data and […]

Read More
  • 01 Apr
  • 2020

COVID-19 Public Health Emergency of International Concern (PHEIC)

  • News

Global research and innovation forum: towards a research roadmap The World Health Organization (WHO) has recently developed and launched this […]

Read More
  • 30 Mar
  • 2020

Commission launches “COVID-19 Clinical Management Support System”

  • News

The European Commission launched the “COVID-19 Clinical Management Support System” with the aim to support clinicians in hospitals that are […]

Read More
  • 30 Mar
  • 2020

Implications of coronavirus disease (COVID-19) on methodological aspects of ongoing clinical trials

  • News

EMA has developed this guidance covering actions that sponsors of ongoing clinical trials affected by the coronavirus disease (COVID-19) pandemic should take to help […]

Read More
  • 26 Mar
  • 2020

EURO-NMD & COVID-19

  • News

EURO-NMD has taken some important actions in response to the Covid-19 crisis. In particular, two online surveys have been developed, […]

Read More
  • 18 Mar
  • 2020

Jazz4Rare 2020 by Foundation of Borys the Hero

  • News

Jazz4Rare 2020, a unique jazz concert took place in Emigration Museum in Gdynia on Rare Disease Day. Concert was positive […]

Read More
  • 17 Mar
  • 2020

European Conference on Rare Diseases & Orphan Products 2020 moves online

  • News

In the context of the current COVID-19 pandemic and in line with WHO guidelines, the upcoming European Conference on Rare […]

Read More
  • 11 Mar
  • 2020

Global Data Access for Solving Rare Disease

  • News

Rare but not uncommon “A more integrated system of gathering genomic data offers a solution with potential channels for return […]

Read More
  • 11 Mar
  • 2020

Towards the implementation of Personalised Medicine in Europe

  • News

ICPerMed and ERA PerMed published the joint statement “Towards the Implementation of Personalised Medicine in Europe – The Advantage of […]

Read More
  • 11 Mar
  • 2020

You are not alone as we all are one!

  • News

Indian Organisation for Rare Diseases (IORD)’s World Rare Disease Day-2020 That’s the takeaway from IORD conference on ‘Raising the Awareness: […]

Read More
  • 1
  • ...
  • 28
  • 29
  • 30
  • 31
  • 32
  • ...
  • 39

Search

Categories

  • EJP RD News
  • Networking events funded by EJP RD
  • News
  • Uncategorized

Popular Tags

clinical research clinical trial conference congress data sharing dravet syndrome drug repurposing EJPRD ema ERN ern research training workshops european commission EURORDIS FAIR fda funding funding opportunity gene therapies genomics health data IHI IMI innovation irdirc JTC2022 MOOC networking networking event networking support scheme NSS OMP regulation open call orphan drugs paediatric patient patients rare diseases report survey symposium task force training virtual event webinar workshop

Latest Posts

  • SAVE THE DATE: RE(ACT) Congress and IRDiRC Conference 2023
  • Innovative Health Initiative (IHI) announces Kick-off and brokerage event
  • EC organises EU–Africa Pharma and Healthcare Marketplace and Matchmaking events
  • Rare Diseases Research (RDR) Challenge #4: Development of a novel pre-clinical assay (TRXassay) to detect triplet repeat expansions
  • EJP RD Training Workshop: Genetic Biobanks for rare disease research

Featured Links

  • Helpdesk
  • Sitemap
  • Careers

Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

© Copyright EJP RD.
×
You must be logged in before using WishList. To login click here