EURORDIS has launched a new contribution on ERNs and health data to trigger a strategic discussion on health data and […]
Read MoreGlobal research and innovation forum: towards a research roadmap The World Health Organization (WHO) has recently developed and launched this […]
Read MoreThe European Commission launched the “COVID-19 Clinical Management Support System” with the aim to support clinicians in hospitals that are […]
Read MoreEMA has developed this guidance covering actions that sponsors of ongoing clinical trials affected by the coronavirus disease (COVID-19) pandemic should take to help […]
Read MoreEURO-NMD has taken some important actions in response to the Covid-19 crisis. In particular, two online surveys have been developed, […]
Read MoreJazz4Rare 2020, a unique jazz concert took place in Emigration Museum in Gdynia on Rare Disease Day. Concert was positive […]
Read MoreIn the context of the current COVID-19 pandemic and in line with WHO guidelines, the upcoming European Conference on Rare […]
Read MoreRare but not uncommon “A more integrated system of gathering genomic data offers a solution with potential channels for return […]
Read MoreICPerMed and ERA PerMed published the joint statement “Towards the Implementation of Personalised Medicine in Europe – The Advantage of […]
Read MoreIndian Organisation for Rare Diseases (IORD)’s World Rare Disease Day-2020 That’s the takeaway from IORD conference on ‘Raising the Awareness: […]
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