In the EU Health Newsletter released today, there is a focus on the EJP RD as “an opportunity for the ERNs to leverage on research”.
The EJP RD is honored and thankful for this opportunity, our commitment on overcoming fragmentation on rare disease research as well as on strengthening the collaboration with the European Reference Networks (ERN) is stronger than ever. EJP RD and ERNs together can accelerate the access to diagnosis and treatment solutions for rare disease patients, together we can do it!
A special thank you note to all the ERNs for their collaboration and to Dr Isabelle Deve for her support and help on this important article.