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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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    • FUNDING OPPORTUNITIES
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    • TRAINING
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    • RESEARCH TRANSLATION SUPPORT OFFICE
      • Innovation Management Toolbox
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    • CLINICAL STUDIES SUPPORT OFFICE
      • Support office
      • Rare Diseases Clinical Trials Toolbox
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      • Introduction to AREB
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News

EJP RD - European Joint Programme on Rare Diseases - News and events - News
  • 05 May
  • 2020

ERN TRANSPLANT-CHILD PATIENT’S GUIDE

  • News

ERN TransplantChild gives some important recommendations for transplanted patients and their families to take care of their health after this complex […]

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  • 04 May
  • 2020

GA4GH: Regulatory and Ethics Perspective on COVID-19 Data Sharing

  • News

Efficient international collaboration and data sharing, two key components in the advancement of genomic medicine and human health, are proving […]

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  • 04 May
  • 2020

Coronavirus: Commission issues guidance to mitigate clinical trial disruption in the EU

  • News

The Commission has published guidance to ensure that clinical trials can continue taking place in the EU during the COVID-19 pandemic. […]

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  • 04 May
  • 2020

ELIXIR All Hands 2020

  • News

The sixth ELIXIR All Hands meeting will take place virtually 8 -10 June 2020. The meeting brings together members of […]

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  • 04 May
  • 2020

Latest progress on Horizon Europe’s Implementation Strategy

  • News

The rules and simplification measures put in place for Horizon 2020 were widely acknowledged by stakeholders as a big step […]

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  • 29 Apr
  • 2020

EJP RD in the EU Health Newsletter

  • News

In the EU Health Newsletter released today, there is a focus on the EJP RD as “an opportunity for the […]

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  • 28 Apr
  • 2020

ECRIN COVID-19 TASKFORCE

  • News

ECRIN – European Clinical Research Infrastructure Network – has established a COVID-19 Taskforce with its national partners to confront the […]

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  • 28 Apr
  • 2020

GA4GH OmicsXchange Podcast: Re-envisioning the Data Access Process

  • News

Large-scale sequencing initiatives are generating massive volumes of clinical genomic data that have the potential to inform research into human […]

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  • 28 Apr
  • 2020

ELIXIR COVID-19 SLACK WORKSPACE

  • News

Elixir has launched a Slack Workspace to discuss and exchange ideas on SARS-CoV-2 research initiatives, consider collaboration opportunities across ELIXIR […]

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  • 22 Apr
  • 2020

Boosting delivery of rare disease therapies: the IRDiRC Orphan Drug Development Guidebook is out!

  • News

The IRDiRC new review has been published on Nature Reviews – Drug Discovery. The paper is authored by the Orphan […]

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Latest Posts

  • Commentary on 10 years of IRDiRC available as full text
  • Press Release: Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission
  • Open letter: ECRD partner organisations call on the European Commission for a new European strategy on rare diseases
  • Programme available for Europe Biobank Week Roadshow 2022 (EBW22)
  • EMA recommends new medicine for multiple myeloma patients with limited treatment options

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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