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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Category: EJP RD News

EJP RD - European Joint Programme on Rare Diseases - News and events - News - EJP RD News
  • 24 Mar
  • 2023

RE(ACT) Congress & IRDiRC Conference held in Berlin [PRESS RELEASE]

  • EJP RD News

We empowered a community that deserves to be heard. #RAREvolution Berlin, Germany – 24 March 2023. The seventh edition of […]

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  • 22 Mar
  • 2023

New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a workshop on “on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and […]

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  • 17 Mar
  • 2023

Training for patient representatives and advocates on leadership and communication skills

  • EJP RD News

As part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership and communication […]

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  • 16 Mar
  • 2023

DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

  • EJP RD News, ERN-Research (ERICA)

The deadline for the “Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)” […]

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  • 08 Mar
  • 2023

International Women’s Day

  • EJP RD News

Happy International Women’s Day ! EJP RD is proud to celebrate the women who represent 56% of the EJP RD […]

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  • 28 Feb
  • 2023

Rare Disease Day 2023: EJP RD Launches a New Video on National Mirror Groups

  • EJP RD News

It’s Rare Disease Day! For the occasion, EJP RD launched a video focusing on the connection between the expertise and […]

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  • 10 Feb
  • 2023

ERICA WP4 Webinar: Essential requirements before thinking about a clinical trial

  • EJP RD News, ERN-Research (ERICA)

The European Rare Disease Research Coordination and Support Action consortium (ERICA) is organising the WP4 Clinical Trial Support webinar “Essential requirements before […]

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  • 09 Feb
  • 2023

1st International CTNNB1 Syndrome Conference

  • EJP RD News, Networking events funded by EJP RD

A networking event, funded by EJP RD’s Networking Support Scheme, is being organised in Madrid, Spain on March 23rd-24th. This […]

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  • 09 Feb
  • 2023

EJP RD Networking Symposium: Complex genetics of inherited arrhythmias

  • EJP RD News, Networking events funded by EJP RD

This symposium on inherited arrhythmias is funded by the EJP-RD Networking Support Scheme and will take place in Amsterdam in […]

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  • 08 Feb
  • 2023

EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a workshop entitled “Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population […]

Read More
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Latest Posts

  • RE(ACT) Congress & IRDiRC Conference held in Berlin [PRESS RELEASE]
  • Solve-RD Public Symposium: The Impact of Solve-RD on Research & Care of Rare Disease Patients
  • New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)
  • Training for patient representatives and advocates on leadership and communication skills
  • DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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