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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Category: EJP RD News

EJP RD - European Joint Programme on Rare Diseases - News and events - News - EJP RD News
  • 04 Sep
  • 2023

EJP RD Online Training: Item response models for analysing assessments in rare diseases

  • EJP RD News

Join our advanced online training “Item response models for analysing assessments in rare diseases” Mark your calendar for a remarkable […]

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  • 04 Sep
  • 2023

Nomination deadline for the EURORDIS Black Pearl Awards 2024: 10 September

  • EJP RD News

The deadline for nominations for the #EURORDISAwards2024 has been extended to September 10th! The awards recognise the outstanding achievements and […]

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  • 24 Aug
  • 2023

EJP RD Variant Prioritization and Enrichment for Rare Diseases Workshop

  • EJP RD News

Are you intrigued by the world of genetics and its role in uncovering mysteries behind rare diseases? If so, mark […]

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  • 21 Aug
  • 2023

ERICA & EJP RD Joint Conference in Amsterdam

  • EJP RD News, ERN-Research (ERICA), News

The ERICA & EJP RD Joint Conference is scheduled for November 21st, 2023, in Amsterdam. This event aims to unite […]

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  • 16 Aug
  • 2023

EJPRD ERN Workshop: CDH1 related hereditary diffuse type gastric cancer – Registration date extended!

  • EJP RD News, News

The hereditary tumour syndrome that correlates with a carriership of a pathogenic CDH1 variant is very rare and as such underrecognized. Early […]

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  • 14 Jun
  • 2023

Publication of an EJP RD Abstract in the Orphanet Journal of Rare Diseases

  • EJP RD News, News

The abstract on “The European Joint Programme on Rare Diseases: an integrative approach fostering the RD research ecosystem“ submitted in […]

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  • 14 Jun
  • 2023

Our new interview of Pr. Pierre Emmanuel Gleizes – RIBOEUROPE: The European Ribosomopathy Consortium!

  • EJP RD News, News

Watch the insightful interview with Pr. Pierre-Emmanuel Gleizes, Coordinator of RIBOEUROPE: The European Ribosomopathy Consortium.  Funded by the European Joint […]

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  • 08 Jun
  • 2023

New EJP RD ERN Workshop – Urogenital Tissue Engineering from bedside to bench and back!

  • EJP RD News, News

Regenerative Medicine aims to address unmet medical needs by combining our body’s own repair abilities with innovative engineering.  Our workshop […]

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  • 06 Jun
  • 2023

EJP RD – RD Connect Genome-Phenome Analysis Platform (GPAP) webinar

  • EJP RD News, News

This is an introductory webinar to demonstrate the benefits of using the RD-Connect Genome-Phenome Analysis (GPAP) platform for rare-disease analysis. […]

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  • 05 Jun
  • 2023

Brain Metabolism Workshop: From Rare Diseases to Common Biological Pathways

  • EJP RD News, News

Brain metabolism, which has been largely disregarded in the traditional approach to investigating and treating neurological diseases, is a major clue […]

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Latest Posts

  • Together4RD’s newly published Position Statement on collaboration between ERNs and industry
  • New Publication: Making Rare Disease Research Attractive to Companies by IRDiRC Chrysalis Task Force
  • Call for proposals: Establishing novel approaches to improve clinical trials for rare and ultra-rare diseases
  • Registrations for the 2023-2024 session of the Inter-University Diploma of Myology (DIU de Myologie) are open! 
  • EJP RD Online Training: Item response models for analysing assessments in rare diseases

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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