We empowered a community that deserves to be heard. #RAREvolution Berlin, Germany – 24 March 2023. The seventh edition of […]
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In the context of EJP RD’s ERN Workshops, a workshop on “on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and […]
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As part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership and communication […]
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The deadline for the “Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)” […]
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Happy International Women’s Day ! EJP RD is proud to celebrate the women who represent 56% of the EJP RD […]
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It’s Rare Disease Day! For the occasion, EJP RD launched a video focusing on the connection between the expertise and […]
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The European Rare Disease Research Coordination and Support Action consortium (ERICA) is organising the WP4 Clinical Trial Support webinar “Essential requirements before […]
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A networking event, funded by EJP RD’s Networking Support Scheme, is being organised in Madrid, Spain on March 23rd-24th. This […]
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This symposium on inherited arrhythmias is funded by the EJP-RD Networking Support Scheme and will take place in Amsterdam in […]
Read MoreIn the context of EJP RD’s ERN Workshops, a workshop entitled “Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population […]
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