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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Category: News

EJP RD - European Joint Programme on Rare Diseases - News and events - News - News
  • 29 Sep
  • 2023

EURORDIS Open Academy Schools 2024

  • EJP RD News, News

The 2024 edition of the Open Academy Schools will take place in-person on 3-7 June in Barcelona. The face-to-face intensive week of the Open […]

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  • 20 Sep
  • 2023

Together4RD’s newly published Position Statement on collaboration between ERNs and industry

  • News

We are delighted to share Together4RD’s position statement, which delves into a critical topic: the untapped potential of European Reference […]

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  • 28 Aug
  • 2023

Announcement of New Grant Funding Opportunity for Rare Disease Research

  • News

The Food and Drug Administration’s (FDA) Office of Orphan Products Development (OOPD) is pleased to announce availability of funds for […]

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  • 21 Aug
  • 2023

ERICA & EJP RD Joint Conference in Amsterdam

  • EJP RD News, ERN-Research (ERICA), News

The ERICA & EJP RD Joint Conference is scheduled for November 21st, 2023, in Amsterdam. This event aims to unite […]

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  • 16 Aug
  • 2023

EJPRD ERN Workshop: CDH1 related hereditary diffuse type gastric cancer – Registration date extended!

  • EJP RD News, News

The hereditary tumour syndrome that correlates with a carriership of a pathogenic CDH1 variant is very rare and as such underrecognized. Early […]

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  • 28 Jul
  • 2023

ECRIN Training Series: Everything you need to know about submitting a EU Multinational Clinical Study Proposal!

  • News

ECRIN recently launched the applications for an upcoming training series for investigators and project manager in our ECRIN countries to […]

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  • 12 Jul
  • 2023

RD Moonshot steering group just published its recommendations for Research Funders and Health Research Players!

  • News

The Rare Diseases (RD) Moonshot was set up to boost public private collaborations in the areas where there are with […]

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  • 27 Jun
  • 2023

New IRDiRC publication

  • News

IRDiRC proudly announces the publication of the manuscript “Targeting shared molecular etiologies to accelerate drug development for rare diseases“ online, today. The […]

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  • 20 Jun
  • 2023

MSCA-DN-2023 Call Info Event Recap and Information

  • News

The MSCA-DN-2023 Call info event that took place on 14 June 2023, with more than 1000 registrations, around 1500 viewers […]

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  • 14 Jun
  • 2023

Publication of an EJP RD Abstract in the Orphanet Journal of Rare Diseases

  • EJP RD News, News

The abstract on “The European Joint Programme on Rare Diseases: an integrative approach fostering the RD research ecosystem“ submitted in […]

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Latest Posts

  • Pre-announcement: new facilitation window for the MOOC From Lab to Clinic: Translational Research for Rare Diseases
  • Managing RD biological sample data in Biobanks: lessons learned from the EJP RD training workshops
  • EURORDIS Open Academy Schools 2024
  • Together4RD’s newly published Position Statement on collaboration between ERNs and industry
  • New Publication: Making Rare Disease Research Attractive to Companies by IRDiRC Chrysalis Task Force

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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