IRDiRC is delighted to share the release of Connecting the dots: Embedding progress on rare disease into healthcare, an Economist […]
Read More
The World Duchenne Organization is pleased to announce that the WDO Leadership Award, the highest recognition for individual achievement, was […]
Read More
EURORDIS is delighted to announce that applications for the 2023 edition of the EURORDIS Open Academy Schools are now open. […]
Read More
The 4th edition of the Neuromuscular Translational School organized by EURO-NMD and TREAT-NMD will take place in autumn this year […]
Read More
Rare Diseases International is delighted to announce their upcoming webinar on the use of the International Classification of Diseases 11th […]
Read More
The Agence Nationale de la Recherche is happy to announce their upcoming ICPerMed Conference, titled “Prelude to the Future of […]
Read More
ERN eUROGEN is happy to announce their upcoming webinar, titled “Proximal Hypospadias: Challenges in Surgical Management”. Surgical management of proximal […]
Read More
EURORDIS is pleased to announce that nominations for the EURORDIS Black Pearl Awards are now open until September, 4th 2022. The Awards are presented to patient […]
Read More
IRDiRC is proud to announce that, as one of the outcomes of the MedTech for Rare Diseases Working Group led […]
Read More
The International Rare Diseases Research Consortium (IRDiRC) is proud to announce that the commentary on 10 years of progress and […]
Read More