Upcoming EJP RD Events
24
Mar
2023Statistical and operational challenges with master protocols
General Information During this webinar, we will explain what is meant by master protocols comparing basket, umbrella and…
- 16:00 - 18:30
- Online
27
Mar
2023EJP RD - ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies
GENERAL INFORMATION ConceptInherited retinal dystrophies (IRDs) constitute a heterogeneous group of retinal diseases that cause the progressive loss…
- 09:30 - 17:00 (28 March 2023)
- Valencia, Spain
03
Apr
2023Training on strategies to foster solutions of undiagnosed rare disease cases
Registration is now open here for the reserve list only until 2 March 2023.An e-mail will be sent by 3…
- 09:30 - 16:30 (5 April 2023)
- Rome, Italy
27
Apr
2023EJP RD - ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)
GENERAL INFORMATION ConceptAfter more than 20 years of Hereditary breast and ovarian cancer (HBOC) research in Latvia it…
- 09:00 - 13:30 (28 April 2023)
- Riga, Latvia
08
May
2023EJP RD - ERN Workshop: RARE TOGETHER
GENERAL INFORMATION Psychosocial needs play an important role in rare diseases. There are common burdensome and stressful events…
- 10:00 - 16:00 (9 May 2023)
- Nijmegen, Netherlands
18
May
2023EJP RD - ERN Workshop: Genetics and Precision Medicine in Rare Diseases
GENERAL INFORMATION ConceptPrecision medicine is an emerging approach to clinical research and patient care based on patient-individual medical…
- 14:30 - 15:30 (19 May 2023)
- Lisbon, Portugal
22
May
2023EJP RD ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach
General Information Concept and aimDT is defined as a rare benign monoclonal fibroblastic proliferation that arises in soft…
- 10:30 - 17:00 (23 May 2023)
- Milan, Italy
25
May
2023EJP RD - ERN Workshop: Young Investigator Workshop on Basic Science and Translational Immunology in PSC
GENERAL INFORMATION ConceptIn order to promote the engagement of young investigators into Primary Sclerosing Cholangitis (PSC) research and…
- 09:00 - 17:00 (26 May 2023)
- Hamburg, Germany
04
Jun
2023EJP RD - ERN Workshop on Fetal and Postnatal multidisciplinary management in RD (Myelomeningocele and Lower urinary tract obstruction, LUTO)
ORGANIZERS Giovanni Mosiello, MD, FEAPU, FEBPS, Department of Urology: Neuro- Urology, Bambino Gesù Pediatric and Research Hospital, Rome…
- 18:00 - 13:00 (6 June 2023)
- Krakow, Poland
08
Jun
2023EJP RD - ERN Workshop: The Blood-Brain Barrier: current research and novel therapeutic crossing approaches
GENERAL INFORMATION ConceptThe normal functioning of the brain and the central nervous system is protected by the blood-brain…
- 14:30 - 13:00 (9 June 2023)
- Padua, Italy
26
Oct
2023Training for patient representatives and advocates on leadership and communication skills
GENERAL INFORMATION26th – 27th October 2023.All applicants will receive an email on the status of their application (if…
- 09:00 - 18:00 (27 October 2023)
- Gdańsk, Poland