Upcoming EJP RD Events

24

Mar

2023

Statistical and operational challenges with master protocols

General Information During this webinar, we will explain what is meant by master protocols comparing basket, umbrella and…

  • 16:00 - 18:30
  • Online

27

Mar

2023

EJP RD - ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies

GENERAL INFORMATION ConceptInherited retinal dystrophies (IRDs) constitute a heterogeneous group of retinal diseases that cause the progressive loss…

  • 09:30 - 17:00 (28 March 2023)
  • Valencia, Spain

03

Apr

2023

Training on strategies to foster solutions of undiagnosed rare disease cases

Registration is now open here for the reserve list only until 2 March 2023.An e-mail will be sent by 3…

  • 09:30 - 16:30 (5 April 2023)
  • Rome, Italy

27

Apr

2023

EJP RD - ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

GENERAL INFORMATION ConceptAfter more than 20 years of Hereditary breast and ovarian cancer (HBOC) research in Latvia it…

  • 09:00 - 13:30 (28 April 2023)
  • Riga, Latvia

08

May

2023

EJP RD - ERN Workshop: RARE TOGETHER

GENERAL INFORMATION Psychosocial needs play an important role in rare diseases. There are common burdensome and stressful events…

  • 10:00 - 16:00 (9 May 2023)
  • Nijmegen, Netherlands

18

May

2023

EJP RD - ERN Workshop: Genetics and Precision Medicine in Rare Diseases

GENERAL INFORMATION ConceptPrecision medicine is an emerging approach to clinical research and patient care based on patient-individual medical…

  • 14:30 - 15:30 (19 May 2023)
  • Lisbon, Portugal

22

May

2023

EJP RD ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach

General Information Concept and aimDT is defined as a rare benign monoclonal fibroblastic proliferation that arises in soft…

  • 10:30 - 17:00 (23 May 2023)
  • Milan, Italy

25

May

2023

EJP RD - ERN Workshop: Young Investigator Workshop on Basic Science and Translational Immunology in PSC

GENERAL INFORMATION ConceptIn order to promote the engagement of young investigators into Primary Sclerosing Cholangitis (PSC) research and…

  • 09:00 - 17:00 (26 May 2023)
  • Hamburg, Germany

04

Jun

2023

EJP RD - ERN Workshop on Fetal and Postnatal multidisciplinary management in RD (Myelomeningocele and Lower urinary tract obstruction, LUTO)

ORGANIZERS Giovanni Mosiello, MD, FEAPU, FEBPS, Department of Urology: Neuro- Urology, Bambino Gesù Pediatric and Research Hospital, Rome…

  • 18:00 - 13:00 (6 June 2023)
  • Krakow, Poland

08

Jun

2023

EJP RD - ERN Workshop: The Blood-Brain Barrier: current research and novel therapeutic crossing approaches

GENERAL INFORMATION ConceptThe normal functioning of the brain and the central nervous system is protected by the blood-brain…

  • 14:30 - 13:00 (9 June 2023)
  • Padua, Italy

26

Oct

2023

Training for patient representatives and advocates on leadership and communication skills

GENERAL INFORMATION26th – 27th October 2023.All applicants will receive an email on the status of their application (if…

  • 09:00 - 18:00 (27 October 2023)
  • Gdańsk, Poland