Upcoming EJP RD Events

26

Aug

2022

Networking Support Scheme (NSS) Event: Argonautes Syndrome Science & Family Conference

A funded networking event, the first Argonaute Syndrome Science & Family conference, is being organized to bring together…

  • 18:00 - 13:00 (28 August 2022)
  • Online and Regensburg, Germany

26

Sep

2022

International Summer School on Rare Disease Registries and FAIRification of data

REGISTRATION IS NOW OPEN HERE until the 29th of May 2022. IMPORTANT INFORMATIONThe training course will be held in an ONLINE…

  • 13:30 - 17:10 (30 September 2022)
  • Online

29

Sep

2022

Comprehensive gene profiling, molecular tumor board (mtb) and artificial intelligence in the diagnosis and treatment of patients with rare adult cancers

All times are in EEST (Eastern European Summer Time) GENERAL INFORMATION Increased knowledge of cancer molecular biology and…

  • 09:00 - 16:00 (30 September 2022)
  • Turku, Finland

19

Oct

2022

Quality assurance, variant interpretation and data management in the NGS diagnostics era

GENERAL INFORMATION Due to the force majeure situation and in order to ensure the correct progress of the planned tasks of EJP…

  • 10:00 - 14:00 (21 October 2022)
  • ONLINE

05

Nov

2022

Rhabdoid tumors in clinic and research: From basic biology to the patient bed

GENERAL INFORMATION ConceptIn this workshop we would like to give a state-of the-art overview on clinical and molecular…

  • 07:30 - 15:45
  • Charenton-le-Pont, France

10

Nov

2022

Training for patient representatives and advocates on leadership and communication skills

IMPORTANT INFORMATIONThe training course will be held in an ONLINE FORMAT, given the uncertainties linked to the evolution…

  • 09:30 - 17:30 (11 November 2022)
  • Online