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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Tag: workshop

EJP RD - European Joint Programme on Rare Diseases - News and events - News - workshop
  • 24 Aug
  • 2023

EJP RD Variant Prioritization and Enrichment for Rare Diseases Workshop

  • EJP RD News

Are you intrigued by the world of genetics and its role in uncovering mysteries behind rare diseases? If so, mark […]

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  • 19 Apr
  • 2023

Empowering Teenagers in Health Research: Join Our Workshop and Learn How to Make a Difference in Biomedical Research and Healthcare Services

  • EJP RD News

Attention teenagers aged 12-18 with an interest in health, biomedical research, healthcare, and children’s rights! Join our upcoming workshop to […]

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  • 22 Mar
  • 2023

New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a workshop on “on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and […]

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  • 23 Jan
  • 2023

New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a workshop entitled “Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary […]

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  • 06 Dec
  • 2022

EJP RD – ERN Workshop: RARE TOGETHER

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: RARE TOGETHER” is being organized by Dr Rosanne Smits […]

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  • 23 Nov
  • 2022

EJP RD – ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies” […]

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  • 28 Oct
  • 2022

EJP RD – ERN Workshop: Epidermolysis bullosa: from genes to translation into therapies

  • EJP RD News

In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “Epidermolysis bullosa: from genes to translation into therapies” is being organized by […]

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  • 10 Oct
  • 2022

TMEX – TRANSLATIONAL MEDICINE EXPLAINED 5 DAY WINTER SCHOOL 2023

  • News

Registration is now open to the yearly 5-day course on “Translational Medicine Explained (TMex) ” on 13-17 February 2023 in […]

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  • 22 Sep
  • 2022

ECRIN NSS Meeting: Identifying obstacles hindering the development of academic-sponsored trials for drug repurposing on rare-diseases

  • Networking events funded by EJP RD

As a continuation of the funding of an EJP RD NSS call, ECRIN is holding a two-day workshop and networking […]

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  • 17 Aug
  • 2022

EJP RD “Bring Your Own Omics Data” Workshop pre-registration now open

  • EJP RD News

The EJP RD “Bring Your Own Omics Data” Workshop is now open.  The 2-day workshop will take place on November 17th and […]

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Latest Posts

  • Together4RD’s newly published Position Statement on collaboration between ERNs and industry
  • New Publication: Making Rare Disease Research Attractive to Companies by IRDiRC Chrysalis Task Force
  • Call for proposals: Establishing novel approaches to improve clinical trials for rare and ultra-rare diseases
  • Registrations for the 2023-2024 session of the Inter-University Diploma of Myology (DIU de Myologie) are open! 
  • EJP RD Online Training: Item response models for analysing assessments in rare diseases

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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