A new article entitled Identifying obstacles hindering the conduct of academic-sponsored trials for drug repurposing on rare-diseases: an analysis of […]
Read MoreThe World Duchenne Organization is pleased to announce the launch of the Accredited Duchenne Centers Program. This global program is […]
Read MoreThe registration for the Third International Summit on Human Genome Editing is now open. The event will take place on […]
Read MoreEJP RD is glad to partner with Alexion’s annual Rare Conversations conference, “Rare Disease Policies: Pioneering the way towards a […]
Read MoreEJP RD is glad to announce that the last call for Research Mobility Fellowships is now open until November, 13th, 2022. The call […]
Read MoreThe Food and Drug Administration’s (FDA) Office of Orphan Products Development (OOPD) is pleased to announce availability of funds to […]
Read MoreThe Council for International Organizations of Medical Sciences (CIOMS) has recently released a glossary of terms and definitions taken from […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on Rare Diseases (EJP RD) are jointly organizing […]
Read MoreIRDiRC is delighted to share the release of Connecting the dots: Embedding progress on rare disease into healthcare, an Economist […]
Read MoreThe World Duchenne Organization is pleased to announce that the WDO Leadership Award, the highest recognition for individual achievement, was […]
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