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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Tag: EURORDIS

EJP RD - European Joint Programme on Rare Diseases - News and events - News - EURORDIS
  • 21 Sep
  • 2022

EURORDIS Open Academy Schools 2023 Applications are open

  • News

EURORDIS is delighted to announce that applications for the 2023 edition of the EURORDIS Open Academy Schools are now open. […]

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  • 24 Aug
  • 2022

Nominations open for the EURORDIS Black Pearl Awards 2023

  • News

EURORDIS is pleased to announce that nominations for the EURORDIS Black Pearl Awards are now open until September, 4th 2022. The Awards are presented to patient […]

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  • 06 May
  • 2022

Global Survey on the Journey to Diagnosis for Persons Living with a Rare Disease

  • News

RDI is partnering with the EURORDIS Rare Barometer Survey project to launch the Global Survey on the Journey to Diagnosis […]

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  • 15 Feb
  • 2022

Rare Disease Day at the World Expo Dubai

  • News

The NGO Committee for Rare Diseases, Ågrenska Foundation, Rare Diseases International (RDI), and EURORDIS-Rare Diseases Europe are jointly organising their 2022 […]

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  • 03 Feb
  • 2022

Prof. Franz Schaefer conferred EURORDIS Scientific Award 2022

  • EJP RD News, News

The European Joint Programme on Rare Diseases (EJP RD) is proud to announce that EJP RD member Prof. Franz Schaefer […]

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  • 19 Nov
  • 2021

EURORDIS Photo Award 2022

  • News

The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and […]

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  • 22 Oct
  • 2021

Expression of interest to participate in the first online paediatric expert patients training workshop

  • EJP RD News

DEADLINE EXTENDED: 23 NOVEMBER 2021 Are you an adolescent aged from 12 to 18 interested in the themes of health, […]

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  • 20 Oct
  • 2021

Launch of new Innovative Medicines Initiative project, Screen4Care

  • News

Yesterday marked the official launch of Screen4Care which is a new EU Research Project focussed on accelerating diagnosis for Rare Disease patients through genetic newborn screening and advanced […]

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  • 08 Oct
  • 2021

EURORDIS announces 32nd Round Table of Companies Workshop

  • News

EURORDIS Rare Diseases Europe is organising its 32nd Round Table of Companies (ERTC) workshop on the theme of “The impact […]

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  • 01 Jun
  • 2021

Nominations open for the EURORDIS Black Pearl Awards 2022

  • News

EURORDIS is pleased to announce that nominations for the EURORDIS Black Pearl Awards 2022 are now open. The Awards are presented to patient advocates and organisations, […]

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Latest Posts

  • Solve-RD Public Symposium: The Impact of Solve-RD on Research & Care of Rare Disease Patients
  • New EJP RD – ERN Workshop on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and Lower urinary tract obstruction (LUTO)
  • Training for patient representatives and advocates on leadership and communication skills
  • DEADLINE EXTENDED: EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)
  • International Women’s Day

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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