Catherine Nguyen: Dr.Catherine Nguyen is the director of the INSERM Genomic, Genetic and Bioinformatic Thematic Institute. Since April 2020, she serves as the vice-chair of the Funders Constituent Committee of IRDiRC. She has over 30 years of experience in research in genomics and she has been leading since 2005 the Inserm TAGC Transcriptome laboratory in Marseille, France, dedicated to functional genomics studies. She was member of various evaluation committees or commissions of reflection, in her domain of expertise as well as in genetics, immunology and cancer research… encompassing large scale molecular approaches such as Genomic, transcriptomic. She also advices at a national and international level. She performed more than 30 courses in National and international universities (Pasteur Institut, Paris, BBSGMarseille; ESIL GBMA Marseille, Welcome trust summer schools, UK; European School of Haematology (ESH) Dublin, Irland; University of St Joseph, Lebanon, USTH Vietnam). She supervised 45 masters’ and 24 PhD students. She is the co-author of more than 102 research articles in international journals, 31 reviews, 6 book chapters and 43 invited lecturers; more than 100 oral communications in national & international meetings.
Director of the Genomic, Genetic and Bioinformatic Thematic Institute, INSERM
Daria Julkowska : Daria Julkowska has over 15 years of experience in research and management. She is the Scientific Coordinator of the European Joint Programme on Rare Diseases and also is responsible for the coordination of the IRDiRC Scientific Secretariat. This position allows her to implement the strategic rare disease research and funding recommendations of IRDiRC to the development of EJP RD which includes the participation of the European Research networks. She is involved in the rare diseases field since 2010, starting from E-Rare, the ERA-Net for Research programmes on rare diseases, where for the first two years she occupied the position of the project manager to finally (April 2013-December 2018) take over the coordination of the programme. As the coordinator, she developed and put into action a set of collaborations facilitating rare diseases research, including the partnerships with European Research Infrastructures and Patients’ Organizations. She has an extensive knowledge and understanding of European funding schemes and programmes.
Dr. Julkowska obtained her international PhD in molecular biology at the University of Paris XI, France and University of Gdansk, Poland in 2005. She pursued her scientific vocation by the post-doctoral experience in cellular biology, at Institut Pasteur, Paris and extensive training in communication and European Union counselling. She also holds MSc in Management of Research from the University of Paris Dauphine.
EJP RD Coordinator
Juliane Halftermeyer: Juliane completed a Ph.D. in Oncology in France working on Acute Promyelocytic Leukemia. She worked at the Consulate General of France in Atlanta, Georgia, USA as Deputy Attaché for Science and Technology. In 2013 she came back to France to work for the French National Research Agency (ANR) as project manager on the E-Rare-3 programme. She later joined the Fondation ARC, an organization of public utility dedicated to cancer research, as scientific project manager and since March 2019, she is back in to the rare diseases field as Senior Project Manager of the European Joint Programme on Rare Diseases. In particular, her role is to participate in the management of the coordination and transversal activities as well as all activities related to the Pillar 1 – Collaborative research funding.
Senior Project Manager for Pillar 0 – Coordination and Transversal Activities and Pillar 1 – Collaborative Research Funding
Yanis Mimouni: Yanis is a Doctor of Pharmacy with a MSc in Pharmaceutical Medicine (Clinical Development of Health Products). He participated in the set-up and coordinated more than forty European and international research projects. These latter included rare diseases therapeutic area and comprised phase I, II, III and IV clinical trials; registries; translational; diagnostic, pharmaco-epidemiological and pharmacovigilance projects. Yanis initiated the exploitation of medical Information Systems and Databases to optimize project execution and inform Medical Decision. He joined the European Joint Program on Rare Diseases in July 2019 as Senior Project Manager. His role is to participate in the management of the coordination and transversal activities as well as all activities related to the Pillar 2 – Virtual Platform for Data and Services
Senior Project Manager – Coordination and Transversal Activities and Pillar 2 – Innovative coordinated access to data and services for transformative rare diseases research
Galliano Zanello: Galliano completed a Ph.D. in Immunology at INRA (French National Institute for Agricultural Research, Department of Animal Health, Unit of Infectious Diseases and Public Health) and was subsequently granted a research fellowship at the University of Toronto, Department of Medicine. His research focused on understanding the mechanisms of chronic intestinal inflammation and host-microbiota interactions. Following his postdoctoral training, Galliano joined industry as a Research Scientist in developing cellular immunotherapies (CAR-T regulatory cells) for the treatment of inflammatory and autoimmune diseases. Since January 2019, Galliano joined Inserm (French National Institute of Health and Medical Research) as a Senior Project Manager of the European Joint Programme on Rare Diseases (EJP RD). His role is to participate in the coordination of the activities associated with the Pillar 4 – Innovation and Clinical Trials Support, manage the Scientific Secretariat of the International Rare Diseases Research Consortium (IRDiRC), and stimulate good connection and strategic alignment between the activities of EJP RD and IRDiRC.
Alexander Parry : Alex graduated from Imperial College School of Medicine in 2013 with an additional bachelor’s degree in neuroscience and mental health. He published a study into the effect of unit pricing of alcohol on consumption habits in 2012. He worked as a hospital doctor for 6 years in the UK before completing a master’s degree at the Paris school of Public Health (EHESP) in 2020 and has a strong interest in health and behavioural economics. His dissertation was on mapping and understanding European mental health research. He joined the EJP RD in March 2021 as senior project manager as well as managing the scientific secretariat of the International Rare Diseases Research Consortium (IRDiRC).
Blandine Castrillo: Blandine has a Master’s degree in European Project Management from the University of Cergy-Pontoise (UCP, France). From 2016, she worked for the French Research Agency (ANR) as administrative and financial officer for European Project, especially on ERA-NET projects (funded by FP7 & H2020 programmes). She was also involved for three years in the coordination of E-RARE-3. After a short experience as controller of French participants funded by the EU Structural and Investment funds, she joined the EJP RD team in January 2020 as administrative and financial manager of the project.
Administrative and Financial Manager
Tanguy Onakoy : Tanguy completed a Master’s Degree in Project Engineering and Intercultural Communications at New Sorbonne University in Paris. After several experiences in communications and marketing in different fields (GQ magazine, Catholic University of Paris, video production companies…), Tanguy joined the European Joint Programme on Rare Diseases in September 2020 as the Communication Manager.