The 5th International Conference on Rare Diseases (RARE2023) will be held in Budapest, Hungary on 30 November – 1 December 2023. RARE2023 is honored to welcome world-renowned speakers from 15 different countries, all of whom are experts in the field of Rare Diseases, who will present ground-breaking and cutting-edge news on diagnosis, treatments and networking…
The Agence Nationale de la Recherche is happy to announce their upcoming ICPerMed Conference, titled « Prelude to the Future of Medicine ». The two-day conference will be held on October 5th and 6th in Paris, France. The conference will provide insight into what the future of medicine will look like by presenting concrete examples of personalised…
Following the 11th European Conference on Rare Diseases and Orphan Products (ECRD) that was held from June 27th to July 1st and was organized by EURORDIS and co-organized by Orphanet with EJP RD serving as a Full Partner, the involved parties came together to write an open letter to Commissioner Kyriakides of the European Commission, calling for…
The European, Middle Eastern & African Society for Biopreservation and Biobanking (ESBB) and BBMRI-ERIC are organising the Europe Biobank Week Roadshow 2022 (EBW22) in partnership with the BBMRI ERIC Stakeholder Forum Patient Pillar, BBMRI.it, the Research Translational (IRCCS) Paediatric Bambino Gesù Hospital, and the paediatric network IDEA. The second stop of the EBW22 will be…
The Duchenne Data Foundation is pleased to invite you to the 6th edition of the Duchenne Patient Academy, of which the theme is « Changing Perspectives ». The conference aims to inspire and equip patient advocates to become change makers and build a better future for people living with dystrophinopathies. The Academy provides online training for Duchenne…
The European, Middle Eastern & African Society for Biopreservation and Biobanking (ESBB) and BBMRI-ERIC are organising the Europe Biobank Week Roadshow 2022 (EBW22) in partnership with the BBMRI ERIC Stakeholder Forum Patient Pillar, BBMRI.it, the Research Translational (IRCCS) Paediatric Bambino Gesù Hospital, and the paediatric network IDEA. The second stop of the EBW22 will be…
The International Consortium for Personalised Medicine is pleased to invite you to the ICPerMed Conference: Prelude to the Future of Medicine, which will provide insight into what future of medicine will look like by presenting concrete examples of personalised medicine approaches and aspects already in practice. The hybrid event (in-person + virtual conference) will take place over…
The 16th Genomics of Rare Disease Conference is being organized a virtual event targeted towards professionals in genomics research and clinical care, and aims to discuss how genomic science and advanced technology can support research to improve clinical practice in rare diseases. The fully online conference will take place over two days on March 28th – 29th from 13.00 – 18.00 CET. Registration…
The 11th European Conference on Rare Diseases and Orphan Products (ECRD) 2022 is being organized by EURORDIS and co-organized by Orphanet, with EJP RD serving as a full partner. The ECRD is a patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies. The fully online conference will take place…
The 2nd International Conference on Rare Diseases is being organized by 95, Rare Alliance Greece. With the theme of « The Balancing Act between Equity and Sustainability », the Conference aims to promote the need to foster innovation and the positive contribution that innovation can make in promoting social cohesion, reducing inequalities and expanding opportunities persons living with…