In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: RARE TOGETHER” is being organized by Dr Rosanne Smits […]
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In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop: New Therapeutical Approaches for Inherited Retinal Dystrophies” […]
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In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “Epidermolysis bullosa: from genes to translation into therapies” is being organized by […]
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We are thrilled to share with you the new EJP RD video produced for ASHG TV which focuses on the […]
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We are glad to announce the launch of the new MOOC entitled “Introduction to translational research for Rare Diseases” will […]
Read MoreOn October 17th, a new MOOC entitled “Introduction to translational research for Rare Diseases” will be available. On this five-week […]
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A new article entitled Identifying obstacles hindering the conduct of academic-sponsored trials for drug repurposing on rare-diseases: an analysis of […]
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The International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on Rare Diseases (EJP RD) are jointly organizing […]
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EJP RD held its annual General Assembly and Consortium Meeting on 13-15 September 2022 in Porto, Portugal. The event gathered […]
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We are happy to invite you to take part in a workshop addressing “Ethics and regulatory considerations for ERN Data Access Committee […]
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