Accessible at https://doi.org/10.1177/26330040231188979, the Chrysalis Task Force identified key financial and non-financial factors that make rare disease research and development […]
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IRDiRC’s Diagnostic Scientific Committee (DSC) plays a critical role in identifying and addressing current and future bottlenecks to rare disease gene […]
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The Interdisciplinary Scientific Committee (ISC) is a multi-stakeholder, multi-disciplinary group of experts in rare diseases medical research with a strong […]
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IRDiRC launches the Call for Members for the four new Task Forces of the 2023 Roadmap. Check out the newly approved Task […]
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IRDiRC’s Therapies Scientific Committee (TSC) would like to broaden the committee membership, to represent the worldwide rare diseases therapies community in […]
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The International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on Rare Diseases (EJP RD) are jointly organizing […]
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IRDiRC is delighted to share the release of Connecting the dots: Embedding progress on rare disease into healthcare, an Economist […]
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IRDiRC is proud to announce that, as one of the outcomes of the MedTech for Rare Diseases Working Group led […]
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The International Rare Diseases Research Consortium (IRDiRC) is proud to announce that the commentary on 10 years of progress and […]
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The International Rare Diseases Research Consortium (IRDiRC) is pleased to announce today the release of its Rare Diseases Research Initiatives […]
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