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Tag: irdirc

EJP RD - European Joint Programme on Rare Diseases - News and events - News - irdirc
  • 19 May
  • 2022

SAVE THE DATE: RE(ACT) Congress and IRDiRC Conference 2023

  • EJP RD News, News

EJP RD is pleased to announce that the next edition of the 7th RE(ACT) Congress and 5th IRDiRC Conference will […]

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  • 04 Feb
  • 2022

Dr. Anneliene Jonker (IRDiRC) interviewed for article on medical devices for rare diseases

  • News

International Rare Diseases Research Consortium (IRDiRC) member Dr. Anneliene Jonker, Vice Chair of the Therapies Scientific Committee (TSC) of IRDiRC, has been interviewed […]

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  • 27 Jan
  • 2022

Call for Members: IRDiRC Task Force on Drug Repurposing Guidebook

  • News

The Therapies Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force on Drug Repurposing Guidebook to help developers (of […]

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  • 26 Jan
  • 2022

Commentary on 10 years of IRDiRC published in Nature Reviews Drug Discovery

  • News

The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the publication of a commentary on 10 years of progress […]

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  • 24 Jan
  • 2022

Call for Members: IRDiRC Task Force on Disregarded Rare Diseases (PLUTO PROJECT)

  • News

The Therapies Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force to characterize specific commonalities amongst a large group […]

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  • 20 Jan
  • 2022

New IRDiRC publication of the impact of COVID-19 on rare diseases

  • News

The International Rare Diseases Research Consortium (IRDiRC) has published the results of its COVID-19 survey in the Rare Disease and Orphan Drugs Journal.  […]

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  • 03 Nov
  • 2021

Call for Members: IRDiRC Task Force on “Enabling and Enhancing Telehealth for Rare Diseases Across the Globe”

  • News

The Funders Constituent Committee of the International Rare Diseases Research Consortium (IRDiRC) has set up a Task Force to identify barriers […]

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  • 28 Sep
  • 2021

IRDiRC: Call for experts for Primary Care Task Force

  • News

Primary Care Task Force on “Identifying Key Challenges and Opportunities to Advance IRDiRC Goals with Focus on Primary Care” The IRDiRC […]

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  • 10 Sep
  • 2021

Two-Day Online Workshop on Covering Rare Diseases

  • News

The National Press Foundation is organising a two-day online workshop entitled “Covering Rare Diseases”. The workshop will take place on […]

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  • 18 May
  • 2021

IRDiRC Nomination Call: Therapies Scientific Committee

  • News

The International Rare Diseases Research Consortium (IRDiRC) has three Scientific Committees, one each for Diagnostics, Therapies and Interdisciplinary aspects of […]

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Latest Posts

  • WORLD DUCHENNE AWARENESS DAY 2022: Duchenne and Women
  • ERN eUROGEN webinar: Williams-Beuron Syndrome: A Focus on Long-Term Patient Care
  • ERN eUROGEN webinar: Summer ’22 Update
  • New video available on EJP RD Youtube channel
  • Questionnaire on health system resilience in the context of rare diseases

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  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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