The draft Strategic Research Agenda (SRA) developed by the EU funded TO-REACH Consortium is now available for consultation. The SRA has the ambition to address the increasing challenges faced by health systems, directed to those research areas of major relevance in the coming years. In particular, the TO-REACH Strategic Research Agenda provides a European strategy […]
Read MoreOn 17th May, EURORDIS launched a Position Paper on ‘Achieving Holistic Person-Centred Care to Leave No One Behind’, at the EURORDIS Membership Meeting in Bucharest. In this position paper EURORDIS put forward their ambition to have holistic care provided to the 30 million people living with a rare disease in Europe, and their families, by […]
Read MoreThe European Commission has launched the first Horizon Impact Award. This award recognise and celebrate outstanding projects that have used their results to provide value for society. The award aims to show the wider socio-economic benefits of EU investment in research and innovation. The award enables individuals or teams to showcase their best practices and […]
Read MoreThe training, an acticity of the EJP RD WP14.4, took place on 1-2 April in Milan, Italy. The programme of the workshop included a mixture of lectures and practical sessions in small multi-stakeholder groups. The workshop used the problem-based learning (PBL) methodology, an interaction in problem solving which was fueled by a wide range of […]
Read MoreThe EJP RD partners are proud to participate in the Rare Disease Day 2019. For this special occasion, we mobilized everyone and asked them to show their rare, and they did! What about you?
Read MoreWe recently worked with Mediaplanet UK on the 2019 Rare Diseases Campaign! Read the interview where Dr. Daria Julkowska (scientific coordinator of the EJP RD) speaks about how the European Joint Programme on Rare Diseases can help turbo-charge the research for the benefits of patients.
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