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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Tag: rare diseases

EJP RD - European Joint Programme on Rare Diseases - News and events - News - rare diseases
  • 16 Sep
  • 2022

Upcoming update on MOOC “Diagnosis Rare Diseases: from the clinic to research and back”

  • EJP RD News

The French Foundation for Rare Diseases is delighted to announce the upcoming opening of a new facilitation window of the MOOC “Diagnosis Rare […]

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  • 09 Sep
  • 2022

RDI-WHO Webinar on The International Classification of Diseases coming soon

  • News

Rare Diseases International is delighted to announce their upcoming webinar on the use of the International Classification of Diseases 11th […]

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  • 17 Aug
  • 2022

EJP RD “Bring Your Own Omics Data” Workshop pre-registration now open

  • EJP RD News

The EJP RD “Bring Your Own Omics Data” Workshop is now open.  The 2-day workshop will take place on November 17th and […]

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  • 11 Aug
  • 2022

The Smart Guidance tool for the FAIRification of rare disease registries is now available

  • EJP RD News

The EJP RD is proud to announce that the Smart Guidance tool for the FAIRification of rare disease registries was […]

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  • 05 Aug
  • 2022

Commentary on 10 years of IRDiRC available as full text

  • News

The International Rare Diseases Research Consortium (IRDiRC) is proud to announce that the commentary on 10 years of progress and […]

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  • 05 Aug
  • 2022

Press Release: Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission

  • News

London, UK – July 2022: The RDNN Board of Trustees and Management is delighted to announce the recent registration of […]

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  • 01 Aug
  • 2022

Open letter: ECRD partner organisations call on the European Commission for a new European strategy on rare diseases

  • News

Following the 11th European Conference on Rare Diseases and Orphan Products (ECRD) that was held from June 27th to July 1st and […]

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  • 27 Jul
  • 2022

EMA recommends new medicine for multiple myeloma patients with limited treatment options

  • News

The European Medicines Agency (EMA) has recommended a conditional marketing authorisation in the European Union (EU) for Tecvayli (teclistamab), a monoclonal antibody […]

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  • 12 Jul
  • 2022

Webinar: Personalized Therapies in Rare Diseases

  • News

A new, free-of-charge webinar in collaboration with the AAAS/Science magazine is available on demand since July 9th. This webinar broadcasted […]

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  • 06 Jul
  • 2022

Training Course: Quality assurance, variant interpretation and data management in the NGS diagnostics era

  • EJP RD News, News

As part of the training activities proposed by the EJP RD, a 3-day training course titled “Quality assurance, variant interpretation […]

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Latest Posts

  • New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach
  • Satisfaction Survey for EJP RD services
  • Training on Strategies to Foster Solutions of Undiagnosed Rare Disease Cases: Registration Open
  • AFM-Téléthon launches Scientific and Medical Research Call for Proposals for 2023
  • EJP RD Joint Transnational Call 2023: Now Open!

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  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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