EJP RD is co-organising the “Rare Conversations – European Rare Disease Ecosystem: A Collaborative Path Forward” conference in cooperation with Alexion, EURORDIS, EUCOPE, […]
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The Professional Society for Health Economics and Outcomes Research (ISPOR) is organising a webinar entitled “Health Preference Research in the […]
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The National Organization for Rare Diseases (NORD) is organising its annual NORD Summit 2021, one of the largest multi-stakeholder events […]
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The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table discussion on the theme of the future […]
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The United Nations Political Forum on Sustainable Development (HLPF) is co-organising a High-Level Side Event titled “On the road towards […]
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As part of the training activities proposed by the EJP RD, the International Summer School on Rare Disease Registries and […]
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EJP RD is organising an integrative research and innovation strategy meeting on the theme of alignment of national rare disease […]
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The European Research Network for rare skin diseases (ERN-Skin) is launching a series of scientific webinars on rare skin diseases. […]
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The Share4Rare Project announces its 1st open call for patient-driven research projects targeted towards patient organisations and researchers in the field of rare diseases to apply for […]
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The European Expert Group on Orphan Drug Incentives (OD Expert Group), in collaboration with media partner EURACTIV, is organising a webinar on […]
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