As part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership and communication […]
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The World Duchenne Organization is pleased to announce that thanks to a collaborative initiative driven by their technical partners, FAIR […]
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As part of the training activities proposed by EJP RD, an 3-day training course on “Training on strategies to foster solutions of undiagnosed […]
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Fondazione Gianni Benzi Onlus is jointly organising with Università degli Studi di Bari Aldo Moro the XV Foresight Training Course […]
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The upcoming EJP RD training entitled Biobanking in rare diseases: the Poland experience is now open for registration. The 2-day […]
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EURORDIS is delighted to announce that applications for the 2023 edition of the EURORDIS Open Academy Schools are now open. […]
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University Medical Centre Groningen (UMCG) and Fondazione Telethon (FTELE) along with other EJP RD partners are organizing an EJP RD […]
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The third run of the MOOC (Massive Open Online Course) “Diagnosing Rare Diseases: from the Clinic to Research and back” co-developed by the […]
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As part of the EJP RD Training series, an advanced-level training webinar on the topic “Composite endpoints including patient relevant […]
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As part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership […]
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