The Chan Zuckerberg Initiative (CZI) is launching the Rare As One Project to lift up the work that patient communities […]
Read MoreThe newly published article on transparent evaluations of FAIRness that is increasingly required by a wide range of stakeholders, from […]
Read MoreThe EURORDIS Black Pearl Awards is an annual awards ceremony organised by EURORDIS-Rare Diseases Europe to recognise the major achievements […]
Read MoreEuropean Research and Innovation Days is the first annual policy event of the European Commission, bringing together stakeholders to debate […]
Read MoreThe draft Strategic Research Agenda (SRA) developed by the EU funded TO-REACH Consortium is now available for consultation. The SRA […]
Read MoreOn 17th May, EURORDIS launched a Position Paper on ‘Achieving Holistic Person-Centred Care to Leave No One Behind’, at the […]
Read MoreThe European Commission has launched the first Horizon Impact Award. This award recognise and celebrate outstanding projects that have used […]
Read MoreThe training, an acticity of the EJP RD WP14.4, took place on 1-2 April in Milan, Italy. The programme of […]
Read MoreThe EJP RD partners are proud to participate in the Rare Disease Day 2019. For this special occasion, we mobilized […]
Read MoreWe recently worked with Mediaplanet UK on the 2019 Rare Diseases Campaign! Read the interview where Dr. Daria Julkowska (scientific […]
Read More