Call for abstracts MARFANS, the French patient association for Marfan and related syndromes, is pleased to announce its first scientific […]
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The 12th edition of the European Conference on Rare Diseases and Orphan Products (ECRD), for which EJP RD is a partner, will take place […]
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The European Medicines Agency (EMA) is set to host an event, the “Multistakeholder Workshop on Patient Registries” on February 12-13, […]
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The World Duchenne Organization is organising the Duchenne Care Conference 2023. This online conference is taking place on June 7 […]
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We empowered a community that deserves to be heard. #RAREvolution Berlin, Germany – 24 March 2023. The seventh edition of […]
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The 3rd International Conference on Rare Diseases organized by Rare Diseases Greece (RDG), “95” Rare Alliance Greece and Boussias and […]
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In the context of EJP RD’s ERN Workshops, a workshop entitled “Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary […]
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The 4th eNMD conference will be held on 19-21 October 2023 in Munich. Visit the event’s website to get updated on […]
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The registration for the Third International Summit on Human Genome Editing is now open. The event will take place on […]
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EJP RD is glad to partner with Alexion’s annual Rare Conversations conference, “Rare Disease Policies: Pioneering the way towards a […]
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