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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Tag: event

EJP RD - European Joint Programme on Rare Diseases - News and events - News - event
  • 23 Jan
  • 2023

New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach

  • EJP RD News, ERN-Research (ERICA)

In the context of EJP RD’s ERN Workshops, a workshop entitled “Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary […]

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  • 09 Dec
  • 2022

SAVE THE DATE: 4th eNMD Congress

  • News

The 4th eNMD conference will be held on 19-21 October 2023 in Munich. Visit the event’s website to get updated on […]

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  • 05 Oct
  • 2022

Registration open for the Third International Summit on Human Genome Editing

  • EJP RD News

The registration for the Third International Summit on Human Genome Editing is now open. The event will take place on […]

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  • 05 Oct
  • 2022

Rare Conversations – Rare Disease Policies: Pioneering the way towards a resilient ecosystem

  • EJP RD News

EJP RD is glad to partner with Alexion’s annual Rare Conversations conference, “Rare Disease Policies: Pioneering the way towards a […]

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  • 20 Jul
  • 2022

6th Duchenne Patient Academy 2022: Changing Perspective

  • News

The Duchenne Data Foundation is pleased to invite you to the 6th edition of the Duchenne Patient Academy, of which […]

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  • 20 Jun
  • 2022

ICPerMed Conference 2022: Prelude to the Future of Medicine

  • News

The International Consortium for Personalised Medicine is pleased to invite you to the ICPerMed Conference: Prelude to the Future of […]

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  • 13 May
  • 2022

ProDGNE Meeting 2022

  • EJP RD News

The ProDGNE consortium is organising the ProDGNE Meeting 2022, a multi-stakeholder opportunity to meet in person, discuss impactful research in GNE Myopathy (GNEM) and […]

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  • 27 Sep
  • 2021

IMI impact on patient involvement event

  • News

The Innovative Medicines Initiative (IMI) is organising a series of online live sessions on IMI’s Impact, where key actors will […]

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Latest Posts

  • New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach
  • Satisfaction Survey for EJP RD services
  • Training on Strategies to Foster Solutions of Undiagnosed Rare Disease Cases: Registration Open
  • AFM-Téléthon launches Scientific and Medical Research Call for Proposals for 2023
  • EJP RD Joint Transnational Call 2023: Now Open!

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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