We are thrilled to invite you to the Final EJP RD Conference. Scheduled to take place from May 27th to May 28th, 2024 at the Hotel Excelsior Bari, Via G. Petroni, 15, Bari / Puglia, Italy, this conference is set to bring together leading experts, professionals, and enthusiasts from around the world. Please note: the…
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We are delighted to announce the successful outcome of the EJP RD-EFPIA Joint Advanced Webinar on Real-World Data, Machine Learning, and Deep Analytics in rare diseases, which accumulated enthusiastic participation from approximately 300 attendees.For those unable to partake in the live event, we are pleased to inform you that the recorded sessions, featuring keynote speaker…
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Save the Date for the International Congress on Rare Diseases and Orphan Drugs on February 29th, 2024 (Hybrid -Technopolis City of Athens Gasholder 1 – Auditorium “Miltiadis Evert”) & March 1st 2024, (Digital). Registration is open here (early bird deadline: January 31st, 2024) Don’t miss the unique opportunity to be part of a transformative event that…
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The Rare Disease Moonshot welcomes the European Joint Programme on Rare Diseases (EJP RD) as its new member. This collaboration will expand the network and the reach of the Rare Disease Moonshot, maximise the impact of already funded programmes and help identification of best platforms for future public private collaboration. Rare Disease Moonshot’s mission: Scaling up…
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The latest IRDiRC paper, « Drug Repurposing for Rare: Progress and Opportunities for the Rare Disease Community » has been published in Frontiers in Medicine. The paper is available here. This open-access publication, reflecting the collaborative efforts of the IRDiRC Drug Repurposing Task Force and the IRDiRC Therapies Scientific Committee over the past 1.5 years, is a…
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The Innovative Health Initiative (IHI) has now launched IHI – call 6 and IHI – call 7. IHI – call 6IHI – call 6 is a two-stage call for proposals with the following topics: Topic 1: Support healthcare system resilience through a focus on persistency in the treatment of chronic diseases Topic 2: Development of…
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On January 4, 2024, the EU Joint Programme – Neurodegenerative Disease Research (JPND) initiative launched a transnational call for mechanisms and measurement of disease progression in the early phase of neurodegenerative diseases with the aim of improving the understanding of disease mechanisms and advancing measurability of disease progression at early and pre-symptomatic stages of neurodegenerative diseases. Proposals…
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Identification or Validation of Targets for Personalised Medicine Approaches (PMTargets) The European Partnership for Personalised Medicine (EP PerMed), supported by the European Union under Horizon Europe (Grant Agreement N° 101137129), launches its first joint transnational call (JTC2024) for proposals on “Identification or Validation of Targets for Personalised Medicine Approaches (PMTargets)”. In total, 39 funding organisations participate…
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The European Joint Programme on Rare Diseases is organizing the training webinar: « Real-World data, Machine learning and Deep analytics in rare diseases: Regulatory grade data collection for marketing authorization submissions – what is buzz, what is realistic? » that will be held online on 26 January 2024 from 2:00pm to 4:00pm CET. Registration is open here…
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EURORDIS-Rare Diseases Europe proudly announces the appointment of Virginie Bros-Facer, PhD, as its new Chief Executive Officer, starting March 2024. Virginie brings an extensive professional background in rare diseases, scientific research, and patient advocacy, combined with personal insights from her niece’s experience with Congenital Disorders of Glycosylation. EJP RD is proud to have collaborated with…
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