The 3rd International Conference on Rare Diseases organized by Rare Diseases Greece (RDG), “95” Rare Alliance Greece and Boussias and supported by EJP RD took place on February 28 & March 1, 2023. The presentations are now available here: https://www.rarediseases-conference.com/history/presentations-2023/ Following the success of the previous two years and having advanced the policy agenda on…
It’s Rare Disease Day! For the occasion, EJP RD launched a video focusing on the connection between the expertise and knowledge from the Rare Diseases Community of a specific country with the EJP RD countries. The less-than-3min video explains the Rare Diseases National Mirror Groups (NMGs) and their objectives, as well as a few testimonies…
Rare Disease International (RDI) has opened the event platform for #SeeRare – the global Rare Disease Day event organized in partnership with the international Rare Disease Day campaign. #SeeRare will take place online on 28 February 2023, at 14.00 CET | 08.00 EST. The event aims to give greater visibility to rare disease groups around…
To commemorate Rare Disease Day 2022 (February 28th), EJP RD is proud to announce the launch of our Instagram account and an exciting social media collaboration with rare disease influencer Prof. Lara Bloom, President and CEO of the Ehlers-Danlos Society. On Rare Disease Day 2022, Prof. Bloom will take over our Instagram account and post…
The NGO Committee for Rare Diseases, Ågrenska Foundation, Rare Diseases International (RDI), and EURORDIS-Rare Diseases Europe are jointly organising their 2022 Global Rare Disease Day Event on the occasion of Rare Disease Day (February 28th) at the World Expo, Dubai. The event will take place from 07.30 – 13.30 CET (10.30 – 16.30 local time) at…
We recently worked with Mediaplanet UK on the 2019 Rare Diseases Campaign! Read the interview where Dr. Daria Julkowska (scientific coordinator of the EJP RD) speaks about how the European Joint Programme on Rare Diseases can help turbo-charge the research for the benefits of patients. situs toto bo toto situs togel situs togel bet togel…