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EJP RD – European Joint Programme on Rare Diseases EJP RD – European Joint Programme on Rare Diseases
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Tag: report

EJP RD - European Joint Programme on Rare Diseases - News and events - News - report
  • 07 Apr
  • 2023

Translating Research into Innovation: Lessons from 3 Case Studies in Health Partnerships

  • EJP RD News, News

The European Joint Programme on Rare Diseases, alongside TRANSCAN and the Innovative Health Initiative were selected by ERA LEARN to […]

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  • 23 Sep
  • 2022

Report on Health Technology Assessment and reimbursement of rare diseases treatment

  • News

IRDiRC is delighted to share the release of Connecting the dots: Embedding progress on rare disease into healthcare, an Economist […]

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  • 26 Jan
  • 2022

Dravet Syndrome Foundation releases 2021 Therapeutic Pipeline report

  • News

The Dravet Syndrome Foundation Spain works to improve the quality of life of people with Dravet syndrome and their families. […]

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  • 16 Dec
  • 2021

European Research and Innovation Days 2021 report released

  • News

The recently released report of the 2021 European Research and Innovation Days organised in June 2021 by the European Commission […]

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  • 18 Oct
  • 2021

New Report: How patient organizations can drive FAIR data efforts to facilitate research and healthcare

  • News

Last March, the World Duchenne Organization in collaboration with Duchenne Data Foundation organized the second Meeting on FAIR Data Sharing […]

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Latest Posts

  • Together4RD’s newly published Position Statement on collaboration between ERNs and industry
  • New Publication: Making Rare Disease Research Attractive to Companies by IRDiRC Chrysalis Task Force
  • Call for proposals: Establishing novel approaches to improve clinical trials for rare and ultra-rare diseases
  • Registrations for the 2023-2024 session of the Inter-University Diploma of Myology (DIU de Myologie) are open! 
  • EJP RD Online Training: Item response models for analysing assessments in rare diseases

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Where we are

  • EJP RD INSERM Hôpital Charles-Foix
    7 avenue de la République
    94200 Ivry-sur-Seine
    France

The EJP RD initiative has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575

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