IRDiRC is delighted to share the release of Connecting the dots: Embedding progress on rare disease into healthcare, an Economist […]
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The Dravet Syndrome Foundation Spain works to improve the quality of life of people with Dravet syndrome and their families. […]
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The recently released report of the 2021 European Research and Innovation Days organised in June 2021 by the European Commission […]
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Last March, the World Duchenne Organization in collaboration with Duchenne Data Foundation organized the second Meeting on FAIR Data Sharing […]
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