The International Rare Diseases Research Consortium (IRDiRC) is pleased to announce today the release of its Rare Diseases Research Initiatives […]
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Gelareh Emami, a PhD student at the Department of Health Management at Scuola Superiore Sant’Anna, under the supervision of Prof. Giuseppe […]
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RDI is partnering with the EURORDIS Rare Barometer Survey project to launch the Global Survey on the Journey to Diagnosis […]
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The GA4GH Data Access Committee Review Standards subgroup has put together a brief survey on implementation factors when using software or […]
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The European Commission (EC) is inviting interested stakeholders to participate in the open consultation of the Strategic Research and Innovation […]
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Innovative techniques in the biomedical field (such as massive sequencing capacity, gene editing and tissue engineering) have resulted in the development of new unconventional drugs in […]
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What are your wishes and needs for networking? And how is this changed due to the COVID-19 pandemic? We are […]
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The Big Data Steering Group has launched an initiative to develop a Data Standards Strategy that will enable the Network to more […]
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