The Executive Summary of the 10th European Conference on Rare Diseases and Orphan Products held on 14 – 15 May […]
Read MoreRD-Connect GPAP will present the new module GPAP-Phenostore, used to collect standardised phenotypic information from individuals whose omics data will […]
Read MoreTo showcase the importance of data sharing in rare disease drug development and to highlight the first year milestones, the […]
Read MoreDuchenne Patient Academy is hosting on November 30– December 6 an online training dedicated to patient advocacy. The training is […]
Read MoreThis year’s largest event organised by the European Open Science Cloud Executive (EOSC) & Governing Boards with the support of […]
Read MoreEJP RD will be presenting at The European Medicines Agency’s Workshop on Support for Orphan Medicines Development which will take place […]
Read MorePathways explain how the cells in our bodies work. Like a wiring diagram, pathways show the flow of interactions and […]
Read MoreThe Big Data Steering Group set up by the European Medicines Agency (EMA) and the Heads of Medicines Agencies (HMA) […]
Read MoreThe awards strive to recognise and put the spotlight on the exceptional accomplishments in the field of rare diseases. This […]
Read MoreDuchenne Muscular Dystrophy is a degenerative genetic condition which causes weakness and eventual loss of use in muscles of affected […]
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