We empowered a community that deserves to be heard. #RAREvolution Berlin, Germany – 24 March 2023. The seventh edition of […]
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Solve-RD, a research project funded by the European Commission for five years (2018-2022), having the ambitious goals set out by the International Rare Diseases […]
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In the context of EJP RD’s ERN Workshops, a workshop on “on Fetal and Postnatal multidisciplinary management in Rare Diseases – Myelomeningocele (MMC) and […]
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As part of the training activities proposed by EJP RD, an international course entitled “Training for patient representatives and advocates on leadership and communication […]
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The deadline for the “Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)” […]
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Happy International Women’s Day ! EJP RD is proud to celebrate the women who represent 56% of the EJP RD […]
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Deadline to submit applications: May 4, 2023 The U.S. Food and Drug Administration (FDA) announced a new funding opportunity for the FDA Rare […]
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World Duchenne Organization is thrilled to announce that the applications for Duchenne Centers Accreditation are now open. The Accredited Duchenne […]
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The 3rd International Conference on Rare Diseases organized by Rare Diseases Greece (RDG), “95” Rare Alliance Greece and Boussias and […]
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The Interdisciplinary Scientific Committee (ISC) is a multi-stakeholder, multi-disciplinary group of experts in rare diseases medical research with a strong […]
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