We are delighted to share Together4RD’s position statement, which delves into a critical topic: the untapped potential of European Reference […]
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New Publication: Making Rare Disease Research Attractive to Companies by IRDiRC Chrysalis Task Force
Accessible at https://doi.org/10.1177/26330040231188979, the Chrysalis Task Force identified key financial and non-financial factors that make rare disease research and development […]
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Under the Horizon Europe Framework Programme, a new two-stage call for proposals for “Establishing novel approaches to improve clinical trials […]
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Coordinated by Dr Guillaume BASSEZ, Dr Gisèle BONNE and Pr Shahram ATTARIAN, the DIU aims to provide theoretical and practical […]
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Join our advanced online training “Item response models for analysing assessments in rare diseases” Mark your calendar for a remarkable […]
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The deadline for nominations for the #EURORDISAwards2024 has been extended to September 10th! The awards recognise the outstanding achievements and […]
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The Food and Drug Administration’s (FDA) Office of Orphan Products Development (OOPD) is pleased to announce availability of funds for […]
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Are you intrigued by the world of genetics and its role in uncovering mysteries behind rare diseases? If so, mark […]
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The Innovative Health Initiative (IHI) has revealed the potential topics for inclusion in their upcoming calls for proposals. With the […]
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The 5th International Training Course on “Quality Assurance, Variant Interpretation, and Data Management in the NGS Diagnostics Era” is set […]
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