The International Rare Diseases Research Consortium (IRDiRC) has published the results of its COVID-19 survey in the Rare Disease and Orphan Drugs Journal.
The ambitious goals set by IRDiRC by 2027 to fulfill the vision of providing diagnosis and treatments to rare diseases (RDs) patients within one year of coming to medical attention have been challenged by the COVID-19 pandemic. The article aims to identify the needs and challenges of the rare diseases community during the COVID-19 pandemic and to understand whether the pandemic would hinder achievement of the IRDiRC goals.
Access the paper here.
Browse other IRDiRC publications here.