World Orphan Drug Congress 2021: Strategy, advocacy and partnering for the orphan drug industry

The World Orphan Drug Congress organised by Terrapinn is a global, multi-stakeholder orphan drugs & rare diseases meeting that aims to provide attendees with a one-stop progressive scientific and strategic solution to the orphan drugs industry.

The in-person event will take place in Sitges (Barcelona), Spain over four days from November 15th – 18th.

Patient groups can ask for free registration (subject to approval).

The Congress will address solutions to challenges around the political, commercial and scientific issues in manufacturing, clinical trials, strategy, regulation & policy, Market Access & Pricing, Science & Strategy, Pitch & Partner and Precision Medicine through a variety of keynote panels and interactive sessions (see agenda).

Dr. Daria Julkowska, Coordinator of the EJP RD, will moderate the panels on “Responding to the EU OMP review – how to strengthen the EU rare disease ecosystem” (November 15th) and “The European Expert Group on Orphan Drug Incentives – How do we develop a sustainable European ecosystem?” (November 16th).

More information and registration here: