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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
Best Education WordPress
Theme For 2018

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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
Best Education WordPress
Theme For 2018

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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
Best Education WordPress
Theme For 2018

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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
Best Education WordPress
Theme For 2018

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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
Best Education WordPress
Theme For 2018

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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

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Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

Commentary on 10 years of IRDiRC available as full text

5 August 2022

The International Rare Diseases Research Consortium (IRDiRC) is proud to announce that the…

Press Release: Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission

5 August 2022

London, UK – July 2022: The RDNN Board of Trustees and Management is…

Open letter: ECRD partner organisations call on the European Commission for a new European strategy on rare diseases

1 August 2022

Following the 11th European Conference on Rare Diseases and Orphan Products (ECRD) that was held…

Upcoming Events

26

Aug

2022

Networking Support Scheme (NSS) Event: Argonautes Syndrome Science & Family Conference

A funded networking event, the first Argonaute Syndrome Science & Family conference, is being organized to bring together patient families, researchers and clinicians of the AGO1 and AGO2 communities to facilitate the sharing of knowledge.…

  • 18:00 - 13:00 (28 August 2022)
  • Online and Regensburg, Germany

07

Sep

2022

WORLD DUCHENNE AWARENESS DAY 2022: Duchenne and Women

The World Duchenne Awareness Day, taking place each year on September 7th, is the official campaign to raise awareness for people living with Duchenne & Becker muscular dystrophy. Each year, an educational theme is chosen;…

  • 09:00 - 18:00
  • Online
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS