Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
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Latest News
The Smart Guidance tool for the FAIRification of rare disease registries is now available
The EJP RD is proud to announce that the Smart Guidance tool for…
Commentary on 10 years of IRDiRC available as full text
The International Rare Diseases Research Consortium (IRDiRC) is proud to announce that the…
Press Release: Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission
London, UK – July 2022: The RDNN Board of Trustees and Management is…
Upcoming Events
26
Aug
2022Networking Support Scheme (NSS) Event: Argonautes Syndrome Science & Family Conference
A funded networking event, the first Argonaute Syndrome Science & Family conference, is being organized to bring together patient families, researchers and clinicians of the AGO1 and AGO2 communities to facilitate the sharing of knowledge.…
- 18:00 - 13:00 (28 August 2022)
- Online and Regensburg, Germany
07
Sep
2022WORLD DUCHENNE AWARENESS DAY 2022: Duchenne and Women
The World Duchenne Awareness Day, taking place each year on September 7th, is the official campaign to raise awareness for people living with Duchenne & Becker muscular dystrophy. Each year, an educational theme is chosen;…
- 09:00 - 18:00
- Online