The journey doesn’t stop here!
The EJP RD Programme will officially conclude On August 31st, 2024. However, our commitment to the rare diseases community continues with the launch of our next programme, ERDERA (European Rare Disease Research Alliance).
Visit the ERDERA website
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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

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Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Latest News

Upcoming Events

05

Mar

2025

RE(ACT) Congress and IRDiRC Conference 2025

SAVE THE DATE: Welcome to the pinnacle event in rare diseases research – the RE(ACT) Congress and IRDiRC Conference 2025, held jointly by the BLACKSWAN Foundation and the International Rare Diseases Research Consortium (IRDiRC). From…

  • 09:00 - 17:00 (7 mars 2025)
  • Brussels, Belgium
35
COUNTRIES
130
INSTITUIONS
24
ERNs
24
SCIENTISTS AND ADMINS