Reserve your place for the EJP RD
ERN Workshop 'GATA2-related Myelodysplastic Syndromes"
Networking Support Scheme (NSS) Event:
5th European Aniridia Conference
Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
Latest News
Remembering Jordi Llinares Garcia
It is with deepest sadness we have learned about the death of our…
National Organization for Rare Disorders (NORD) organises Rare Breakthrough Summit 2021
The National Organization for Rare Diseases (NORD) is organising its annual NORD Summit…
Virtual Round Table: The future of rare diseases in Europe
The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table…
Upcoming Events
31
Jul
2021Networking Support Scheme (NSS) Event: 5th European Aniridia Conference
The 5th European Aniridia Conference is being organised to enable the sharing of scientific knowledge about the rare genetic eye condition aniridia to prevent sight loss and deal with aniridia’s effects. This workshop has received funding support from the EJP RD’s Networking…
- 10:00 - 18:30 (1 August 2021)
- Online
07
Sep
2021Virtual Round Table: Revision of the European Orphan & Paediatric Regulation and impact for the Nordic Rare Disease Community
The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table discussion on the theme of the future of rare diseases in Europe: Revision of the European Orphan & Paediatric Regulation and impact for the Nordic Rare Disease…
- 12:00 - 13:30
- Online