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Reserve your place for the EJP RD
ERN Workshop 'GATA2-related Myelodysplastic Syndromes"
Registration is open until 16 August

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Networking Support Scheme (NSS) Event:
5th European Aniridia Conference
The fully online conference will take place over two days from July 31st – August 1st from 10.00 – 18.30 CET

Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Latest News

Remembering Jordi Llinares Garcia

21 July 2021

It is with deepest sadness we have learned about the death of our…

National Organization for Rare Disorders (NORD) organises Rare Breakthrough Summit 2021

13 July 2021

The National Organization for Rare Diseases (NORD) is organising its annual NORD Summit…

Virtual Round Table: The future of rare diseases in Europe

13 July 2021

The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table…

Upcoming Events

31

Jul

2021

Networking Support Scheme (NSS) Event: 5th European Aniridia Conference

The 5th European Aniridia Conference is being organised to enable the sharing of scientific knowledge about the rare genetic eye condition aniridia to prevent sight loss and deal with aniridia’s effects. This workshop has received funding support from the EJP RD’s Networking…

  • 10:00 - 18:30 (1 August 2021)
  • Online

07

Sep

2021

Virtual Round Table: Revision of the European Orphan & Paediatric Regulation and impact for the Nordic Rare Disease Community

The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table discussion on the theme of the future of rare diseases in Europe: Revision of the European Orphan & Paediatric Regulation and impact for the Nordic Rare Disease…

  • 12:00 - 13:30
  • Online
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS