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Registration is open for the 2nd run of the first free EJP RD MOOC
"Diagnosing Rare Diseases: from the Clinic to Research and back"
The course will start on October 4th

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The ERN Research Training Workshops
funding opportunity is NOW OPEN
Apply before October 7th

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The application period for the 2022 edition of the EURORDIS
Winter School has been extended until Friday, 10 September.

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Reserve your place for the EJP RD
ERN Workshop 'GATA2-related Myelodysplastic Syndromes"
Registration is open until September 10th

Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Latest News

Presentation of EJPRD during IMPC 10th Anniversary Conference: Mouse Genetics and Genomic Medicine

20 September 2021

The International Mouse Phenotyping Consortium (IMPC) is organising a virtual conference titled “Mouse…

Two-Day Online Workshop on Covering Rare Diseases

10 September 2021

The National Press Foundation is organising a two-day online workshop entitled “Covering Rare…

RWE4Decisions Webinar: Delivering a Health Data Strategy for the European Reference Networks (ERNs)

10 September 2021

RWE4Decisions, a multi-stakeholder initiative commissioned by the Belgian National Institute of Health, is…

Upcoming Events

22

Sep

2021

Webinar: Leaving the darkness – tackling rare bone diseases

Economist Events and Ipsen are organising a webinar entitled “Leaving the darkness: Tackling rare bone diseases” featuring the participation of clinical specialists, health policy experts and patient groups. The webinar will take place on September 22, 2021 from 17.00 – 18.00 CET. The webinar will discuss…

  • 17:00 - 18:00
  • Online

23

Sep

2021

IMPC 10th Anniversary Conference: Mouse Genetics and Genomic Medicine

The International Mouse Phenotyping Consortium (IMPC) is organising a virtual conference titled “Mouse Genetics and Genomic Medicine” to celebrate the occasion of the 10th anniversary of the establishment of the IMPC. The fully virtual conference will take place over two days on September…

  • 14:00 - 23:00 (24 September 2021)
  • Online
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