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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Follow us on social media!

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

Join the paediatric Patient Expert Group (PEG)!

21 juin 2024

Are you an adolescent aged from 12 to 18 living with arthritis (including…

Upcoming Webinar: Connect Your Resources to the EJP RD Virtual Platform!

20 juin 2024

We are excited to announce a specialized online training session for resources looking…

Join the EJP RD End-user Training For the EJP RD Virtual Platform on June 26, 2024!

17 juin 2024

We are excited to invite you to the End-user Training Webinar for the…

Upcoming Events

26

Juin

2024

End-user Training for the EJP RD Virtual Platform

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  • 10:00 - 12:00
  • Online

28

Juin

2024

Training for Resources joining the Rare Diseases Virtual Platform

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  • 10:00 - 12:00
  • Online
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS