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Ipsum has been the industry's standard.
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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
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Ipsum has been the industry's standard.
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Ipsum has been the industry's standard.
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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Follow us on social media!

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

EJP RD – ERN Workshop: RARE TOGETHER

6 December 2022

In the context of EJP RD’s ERN Workshops, a face-to-face workshop entitled “EJP RD – ERN Workshop:…

Survey for SRIA in support for the EP PerMed

5 December 2022

The European Partnership for Personalised Medicine (EP PerMed) Drafting Group, representing the European Members States…

European Partnership Stakeholder Forum Video Recordings

1 December 2022

On 15 and 16 November 2022 the European Commission launched together with ERA-LEARN…

Upcoming Events

15

Dec

2022

XV Foresight Training Course

Fondazione Gianni Benzi Onlus is jointly organising with Università degli Studi di Bari Aldo Moro the XV Foresight Training Course “Boosting research and innovation in a changing regulatory framework”. It will run as a hybrid…

  • 17:00 - 16:10 (16 December 2022)
  • Bari, Italy

31

Jan

2023

Team-Retreat-Coo

Purpose Have fun and make the team closer Preparation Come as you are ! See our last event for more ideas

  • 00:00 - 23:30 (4 February 2023)
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS