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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Follow us on social media!

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

Introducing the new EJP RD Funded Projects Dashboard

29 February 2024

To mark Rare Disease Day, we are launching the EJP RD Funded Project…

New video: EJP RD Celebrate Rare Disease Day With Transformative Stories

29 February 2024

It’s Rare Disease Day! The European Joint Programme on Rare Diseases (EJP RD)…

Join IRDiRC at the Chinese Global Rare Diseases Research Symposium on May 23-25 in Shanghai!

26 February 2024

IRDiRC is delighted to co-host, together with Hope for Rare Foundation and Fudan University, the Chinese Global…

Upcoming Events

13

Mar

2024

Training on strategies to foster solutions of undiagnosed rare disease cases

13-15 March 2024 REGISTRATION IS NOW OPEN here ONLINE REGISTRATION until 14 January 2024. Registration will remain open for the reserve list only until 4 February 2024. An e-mail will be sent by 22 January…

  • 09:30 - 16:00 (15 March 2024)
  • Rome, Italy

15

May

2024

Save the date: 12th European Conference on Rare Diseases and Orphan Products (ECRD)

The 12th edition of the European Conference on Rare Diseases and Orphan Products (ECRD), for which EJP RD is a partner, will take place on 15-16 May 2024, both online and in Brussels! It will be held as an official event under…

  • 08:30 - 17:30 (16 May 2024)
  • Brussels, Belgium
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS