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The workshop will take place on April 30th.
EJP RD Technical Hands-on Workshops:
GA4GH Phenopackets

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The workshop will take place on July 7-8th.
Registration is open for EJP RD Advisory Committee
for Therapeutics (ACT) workshop (ERN-focused event)

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Join today this course designed for individuals with a keen interest in diagnostic research and rare diseases.
EJP RD launched its first MOOC!
Course: Diagnosing Rare Diseases: from the Clinic to Research
and back

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Complete the survey here to help us improve
the Networking Support Scheme, the EJP RD funding opportunity
for networking.

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The event takes place on the 26th of April. Registration is open and.
Resource Webinar: Cellosaurus

Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Latest News

Share4Rare webinar for neuromuscular diseases (NMD) patients and caregivers

20 April 2021

Share4Rare, in collaboration with the World Duchenne Organization and the John Walton Muscular…

European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy

12 April 2021

As part of Solve-RD, Solving the unsolved rare diseases, a European project H2020…

WANTED: Your View on Networking (Survey)

1 April 2021

What are your wishes and needs for networking? And how is this changed…

Upcoming Events

21

Apr

2021

RDCA-DAP: Searching, visualizing and exploring data in the RDCA-DAP platform to identify data of interest for advanced analysis

Register here Example Disease: Friedreich’s ataxia Presenters: Amanda Borens, MSc, Executive Director, Data Science, DCC; Vicki Theurer Crider, Sr. Project Manager, DCC; Kurt Michels, Data Analyst, Data Science The Rare Disease Cures Accelerator–Data and Analytics Platform is launching a…

  • 17:00 - 18:00
  • Online

26

Apr

2021

Resource Webinar: Cellosaurus

Speaker: Amos Bairoch  Date: 26th April  Platform Summary: Cell line knowledge resource. While the Cellosaurus caters for all kind of  cell lines, this webinar will emphasize its use in the context of RD. Currently the Cellosaurus contains ~33,000 cell…

  • 15:00 - 16:00
  • Online
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS