European Joint programme on rare diseases

EJP RD HIGHLIGHTS

Go to EJP RD Internal Call for Proposals – Clinical Trials Methodology Demonstration Projects

EJP RD Internal Call for Proposals – Clinical Trials Methodology Demonstration Projects

The Clinical Trials Methodology Demonstration Projects Call is aimed to show the usability and capability of the innovative statistical methodologies for clinical trials in rare diseases, which have not been demonstrated on existing data for specific rare disease clinical trials yet. The call is now closed for submission of 1-pager letters of interest. 

Go to EJP RD – Rare diseases research (RDR) Challenges Call

EJP RD – Rare diseases research (RDR) Challenges Call

The #4 RDR Challenges for the call have been identified by the Industry partners and validated by the EJP RD are: a. Development of a non-invasive tool for measuring rare disease patient mobility in daily living; b. Delivery system for intranasal administration of biological drugs to neonates; c. Characterize Rare Bone Disorders (RBD) Mobility Challenges in Real World Setting; d. Pre-clinical assay to detect instability of microsatellite repeat expansions.

Go to EJP RD – Networking Support Scheme (NSS) call

EJP RD – Networking Support Scheme (NSS) call

Networking Support Scheme (NSS) is OPEN! Health care professionals, researchers and patient advocacy organizations can apply to organize workshops or conferences on rare diseases and rare cancers. The focus of these events should be research results and innovative solutions. Open on a continuous basis. Collection date of 2 June is cancelled due to the COVID-19 outbreak. Next collection date is 1 Sept. 2020.

Go to Biomedical Research Training Workshop Week. Implementing Biomedical Research Projects

Biomedical Research Training Workshop Week. Implementing Biomedical Research Projects

11 – 14 May 2020. This workshop will be ONLINE, 14:00 – 17:30 each day. Registration is OPEN, deadline is 27 April. Preliminary program – Virtual version – is available. Targeted audience: Researchers, clinicians, and biobankers. The workshop and registration are free of charge.

Go to International course: Training on strategies to foster solutions of undiagnosed rare disease cases

International course: Training on strategies to foster solutions of undiagnosed rare disease cases

27 – 29 April 2020. The training course will be ONLINE. Final program – Virtual version – is available. Registration is closed. It will provide participants (30 max) with useful examples for the resolution of undiagnosed cases. It is free of charge.

Go to EJP RD – video

EJP RD – video

The NEW EJP RD video is available! What is the EJP RD? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD? Do you want to have all the answers? Then watch the video and subscribe to our NEW EJP RD YouTube channel!

Go to EJP RD Internal call – ERN RD training and support program

EJP RD Internal call – ERN RD training and support program

The EJP RD Internal – ERN RD training and support program Fellowship calls are officially closed.

Go to Funded Projects. Results of EJP RD Joint Transnational Call (JTC2019)

Funded Projects. Results of EJP RD Joint Transnational Call (JTC2019)

The list of first EJP RD – JTC2019 funded projects is ONLINE! Title of this call was “Research projects to accelerate diagnosis and/or explore disease progression and mechanisms of rare diseases”.

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