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The event takes place on the 27 April 2021. Registration is open.
Resource Webinar: DECIPHER

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The workshop will take place on September 9-10th. Registration is open until May 31st.
Registration is open for the Advances in diagnostic
and therapeutic methods for lymph flow abnormalities
workshop

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EJP RD IS HIRING!
The coordination team is looking for a Junior Project Manager

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Join today this course designed for individuals with a keen interest in diagnostic research and rare diseases.
EJP RD launched its first MOOC!
Course: Diagnosing Rare Diseases: from the Clinic to Research
and back

Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Latest News

STARS Consortium Training Content on Regulatory Science for Academic Researchers

12 May 2021

In February 2021, the Coordination and Support Action on Strengthening Training of Academia in Regulatory…

FAIRplus Project Webinar: Discovering the FAIR Cookbook

11 May 2021

The FAIRplus project, which aims to develop tools and guidelines for making life…

16th International Congress on Neuromuscular Diseases

11 May 2021

The Neuromuscular Disorders Applied Research Group of the World Federation of Neurology is…

Upcoming Events

19

May

2021

Interpretation of novel biomarkers in related diseases through data interoperability in a pan-rare disease database

REGISTER HERE Example Diseases: Polycystic kidney disease and kidney transplant Presenters: Jagdeep Podichetty, PhD, Director, Predictive Analytics; Klaus Romero, MD, MS, FCP, Chief Science Officer and Executive Director of Clinical Pharmacology; Jackson Burton, PhD, Executive Director, Quantitative…

  • 17:00 - 18:00
  • Online

21

May

2021

16th International Congress on Neuromuscular Diseases

The Neuromuscular Disorders Applied Research Group of the World Federation of Neurology is organizing its 16th Annual Congress on Neuromuscular Diseases. The fully virtual conference will take place on May 21-22 and 28-29, 2021. The detailed program is available here, with a focus on the following themes:…

  • 12:00 - 18:00 (29 May 2021)
  • Online
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COUNTRIES
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INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS