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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
Best Education WordPress
Theme For 2018

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Ipsum has been the industry's standard.
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Theme For 2018

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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

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Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach

23 January 2023

In the context of EJP RD’s ERN Workshops, a workshop entitled “Desmoid tumors (DTs) in patients…

Satisfaction Survey for EJP RD services

16 January 2023

The European Joint Programme on Rare Diseases (EJP RD) - Work Package 19 (WP19:…

Training on Strategies to Foster Solutions of Undiagnosed Rare Disease Cases: Registration Open

16 January 2023

As part of the training activities proposed by EJP RD, an 3-day training course on “Training…

Upcoming Events

13

Feb

2023

TMEX – TRANSLATIONAL MEDICINE EXPLAINED 5 DAY WINTER SCHOOL 2023

Registration is now open to the yearly 5-day course on “Translational Medicine Explained (TMex) ” on 13-17 February 2023 in Barcelona. The course is intended for PhD/MD students, postdocs and other young scientists who are involved in biomedical research…

  • 12:00 - 15:00 (17 February 2023)
  • Barcelona, Spain

06

Mar

2023

Third International Summit on Human Genome Editing

The Third International Summit on Human Genome Editing will take place as an in-person event at the Francis Crick Institute in London over three days from March 6th – 8th, 2023. A multidisciplinary planning committee comprising representatives from eleven nations has been appointed to plan…

  • 09:30 - 18:00 (8 March 2023)
  • London, United Kingdom
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS