Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
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Free workshops!
For personnel affiliated to institutions of the European Reference Networks
Latest News
Marfans 2035: A scientific & prospective meeting of the Marfans association
Call for abstracts MARFANS, the French patient association for Marfan and related syndromes,…
Report: The 1st Argonaute Syndromes Science & Family Conference establishes exciting new collaborations
A funded networking event, the first Argonaute Syndrome Science & Family conference, has been…
International Myotonic Dystrophy Consortium Meeting (IDMC-14)
The 2024 edition of the International Myotonic Dystrophy Consortium Meeting (IDMC-14) will be held in Nijmegen…
Upcoming Events
13
Dec
2023Managing RD biological sample data in Biobanks: lessons learned from the EJP RD training workshops
General information This training workshop is the conclusive event of a series of capacity building programs on biobanking put forth by the European Joint Programme on Rare Diseases. The Rare disease (RD) field benefits from…
- 14:00 - 14:00 (14 December 2023)
- Milan, Italy