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The ERN Research Research Mobility Fellowship
funding opportunity is now open!
Apply before November 28th

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Registration is open for the Drug Repurposing for Rare Diseases
3-part webinar series!
EJP RD is jointly hosting this webinar series with EATRIS, Radboud University Medical Center, Fondazione Telethon, and French Fondation for Rare Diseases
Part 1: 21 October 2021
Part 2: 28 October 2021
Part 3: 4 November 2021

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The ERN Research Training Workshops
funding opportunity : Application deadline extended!
The application deadline is extended to October 22nd

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EJP RD General Assembly & Consortium Meeting 2021
The EJP RD held its annual General Assembly and Consortium Meeting. Over 400 registered participants.

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IRDiRC is looking for experts for
the Primary Care Task Force!
Application deadline: 29 October

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Registration is open for the 2nd run of the first free EJP RD MOOC
"Diagnosing Rare Diseases: from the Clinic to Research and back"
The course will start on October 4th

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The event takes place on 14 October 2021. Registration is open.
Resource Webinar: European Paediatric
Translational Research Infrastructure (EPTRI)

Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Latest News

New Report: How patient organizations can drive FAIR data efforts to facilitate research and healthcare

18 October 2021

Last March, the World Duchenne Organization in collaboration with Duchenne Data Foundation organized…

First rare disease registry that is FAIR from its conception is now online

14 October 2021

All ERNs are tasked to set up patient registries that follow the FAIR…

C-Path and Pulse Infoframe establish patient-centered data harmonisation partnership for rare disease research

14 October 2021

The Critical Path Institute (C-Path), an independent nonprofit organisation, and Pulse Infoframe, a…

Upcoming Events

20

Oct

2021

EURORDIS Round Table of Companies workshop: The impact of the EU regulatory network strategy 2020-2025 on the development of orphan medicines

EURORDIS Rare Diseases Europe is organising its 32nd Round Table of Companies (ERTC) workshop on the theme of “The impact of the EU regulatory network strategy 2020-2025 on the development of orphan medicines” aimed at bringing together participants…

  • 14:00 - 18:00 (21 October 2021)
  • Online

21

Oct

2021

Drug repurposing for rare disease workshop series - part 1

EJP RD is co-organising a series of 3 workshops dedicated to drug repurposing for rare disease. Registration is open here. Registration is free but places are limited. This first session, which will be held on…

  • 15:00 - 17:00
  • Online
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INSTITUTIONS
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SCIENTISTS AND ADMINS