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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

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Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

International Conference on Clinical Research Networks for Rare Diseases

26 September 2022

The International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on…

Report on Health Technology Assessment and reimbursement of rare diseases treatment

23 September 2022

IRDiRC is delighted to share the release of Connecting the dots: Embedding progress…

World Duchenne Organization Leadership Award awarded to Professor Francesco Muntoni

22 September 2022

The World Duchenne Organization is pleased to announce that the WDO Leadership Award,…

Upcoming Events

27

Sep

2022

RDI-WHO Webinar: The International Classification of Diseases

Rare Diseases International is delighted to announce their upcoming webinar on the use of the International Classification of Diseases 11th Revision (ICD -11) for rare diseases. The webinar will be co-hosted by RDI and the…

  • 14:00 - 15:00
  • Online

29

Sep

2022

Comprehensive gene profiling, molecular tumor board (mtb) and artificial intelligence in the diagnosis and treatment of patients with rare adult cancers

All times are in EEST (Eastern European Summer Time) GENERAL INFORMATION Increased knowledge of cancer molecular biology and research methods development has enabled the spread of gene-guided treatment of cancer. In many hospitals Molecular Tumor…

  • 09:00 - 16:00 (30 September 2022)
  • Turku, Finland
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS