European Joint programme on rare diseases

EJP RD HIGHLIGHTS

Go to EJP RD – Pre-announcement call for Innovation Projects

EJP RD – Pre-announcement call for Innovation Projects

The European Joint Programme on Rare Diseases (EJP RD) will implement the present internal (open to EJP RD beneficiaries and their linked third parties) call for collaborative innovation projects to improve RD clinical trials methodologies in limited populations.

Go to EJP RD – Joint Transnational Call 2021 on social sciences and Humanities Research

EJP RD – Joint Transnational Call 2021 on social sciences and Humanities Research

The aim of the call is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear future benefit for patients.

Go to EJP RD PRESENTING AT EMA’S Workshop on Support for Orphan Medicines Development

EJP RD PRESENTING AT EMA’S Workshop on Support for Orphan Medicines Development

EJP RD will be presenting at The European Medicines Agency’s Workshop on Support for Orphan Medicines Development which will take place via broadcast on 30 November 2020.

Go to The Economist Intelligence Units report on rare neurological diseases challenges

The Economist Intelligence Units report on rare neurological diseases challenges

EJP RD member and Coordinator of ERN-RND Holm Graessner , alongside with Mary Kearney from the Irish College of General Practitioners and Primary Care Physician and  Antonio Federico, Professor of Neurology and Director Unit Clinical Neurology and Neurometabolic Diseases in the University of Siena were involved in the production of the Economist Intelligence Unit report entitled “Navigating rare neurological diseases: meeting the challenge for policy makers, patients and healthcare professionals “.

Go to EJP RD – video

EJP RD – video

The NEW EJP RD video is available! What is the EJP RD? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD? Do you want to have all the answers? Then watch the video and subscribe to our NEW EJP RD YouTube channel!

Go to EJP RD – SHORT GUIDE ON PATIENT PARTNERSHIPS IN RARE DISEASES RESEARCH PROJECTS

EJP RD – SHORT GUIDE ON PATIENT PARTNERSHIPS IN RARE DISEASES RESEARCH PROJECTS

The guide aims to encourage fruitful, sustainable and enduring partnerships between scientists and patient organisations, co-leading the way for systematic patient-centered research. Providing definition, examples, testimonials of patient partnerships, describing its benefits, preventing common pitfalls and accompanying applicants, this guide will support applicants to describe the role and added value of patient partnerships in research proposals.

Go to RD-Connect GPAP-Phenostore Webinar

RD-Connect GPAP-Phenostore Webinar

RD-Connect GPAP will present the new module GPAP-Phenostore, used to collect standardised phenotypic information from individuals whose omics data will be analysed. The online Webinar will take place next Thursday 26th November from 15h (CET) to 16h (CET).

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Contact us!

Get in touch with us at coordination(at)ejprarediseases.org