The ERN Research Research Mobility Fellowship
funding opportunity is now open!
Registration is open for the Drug Repurposing for Rare Diseases
3-part webinar series!
The ERN Research Training Workshops
funding opportunity : Application deadline extended!
EJP RD General Assembly & Consortium Meeting 2021
IRDiRC is looking for experts for
the Primary Care Task Force!
Registration is open for the 2nd run of the first free EJP RD MOOC
"Diagnosing Rare Diseases: from the Clinic to Research and back"
Resource Webinar: European Paediatric
Translational Research Infrastructure (EPTRI)
Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
Latest News
New Report: How patient organizations can drive FAIR data efforts to facilitate research and healthcare
Last March, the World Duchenne Organization in collaboration with Duchenne Data Foundation organized…
First rare disease registry that is FAIR from its conception is now online
All ERNs are tasked to set up patient registries that follow the FAIR…
C-Path and Pulse Infoframe establish patient-centered data harmonisation partnership for rare disease research
The Critical Path Institute (C-Path), an independent nonprofit organisation, and Pulse Infoframe, a…
Upcoming Events
20
Oct
2021EURORDIS Round Table of Companies workshop: The impact of the EU regulatory network strategy 2020-2025 on the development of orphan medicines
EURORDIS Rare Diseases Europe is organising its 32nd Round Table of Companies (ERTC) workshop on the theme of “The impact of the EU regulatory network strategy 2020-2025 on the development of orphan medicines” aimed at bringing together participants…
- 14:00 - 18:00 (21 October 2021)
- Online
21
Oct
2021Drug repurposing for rare disease workshop series - part 1
EJP RD is co-organising a series of 3 workshops dedicated to drug repurposing for rare disease. Registration is open here. Registration is free but places are limited. This first session, which will be held on…
- 15:00 - 17:00
- Online