Resource Webinar: DECIPHER
Registration is open for the Advances in diagnostic
and therapeutic methods for lymph flow abnormalities
workshop
EJP RD IS HIRING!
The coordination team is looking for a Junior Project Manager
EJP RD launched its first MOOC!
Course: Diagnosing Rare Diseases: from the Clinic to Research
and back
Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
Latest News
STARS Consortium Training Content on Regulatory Science for Academic Researchers
In February 2021, the Coordination and Support Action on Strengthening Training of Academia in Regulatory…
FAIRplus Project Webinar: Discovering the FAIR Cookbook
The FAIRplus project, which aims to develop tools and guidelines for making life…
16th International Congress on Neuromuscular Diseases
The Neuromuscular Disorders Applied Research Group of the World Federation of Neurology is…
Upcoming Events
19
May
2021Interpretation of novel biomarkers in related diseases through data interoperability in a pan-rare disease database
REGISTER HERE Example Diseases: Polycystic kidney disease and kidney transplant Presenters: Jagdeep Podichetty, PhD, Director, Predictive Analytics; Klaus Romero, MD, MS, FCP, Chief Science Officer and Executive Director of Clinical Pharmacology; Jackson Burton, PhD, Executive Director, Quantitative…
- 17:00 - 18:00
- Online
21
May
202116th International Congress on Neuromuscular Diseases
The Neuromuscular Disorders Applied Research Group of the World Federation of Neurology is organizing its 16th Annual Congress on Neuromuscular Diseases. The fully virtual conference will take place on May 21-22 and 28-29, 2021. The detailed program is available here, with a focus on the following themes:…
- 12:00 - 18:00 (29 May 2021)
- Online