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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

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Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

Marfans 2035: A scientific & prospective meeting of the Marfans association

22 November 2023

Call for abstracts MARFANS, the French patient association for Marfan and related syndromes,…

Report: The 1st Argonaute Syndromes Science & Family Conference establishes exciting new collaborations

13 November 2023

A funded networking event, the first Argonaute Syndrome Science & Family conference, has been…

International Myotonic Dystrophy Consortium Meeting (IDMC-14)

13 November 2023

The 2024 edition of the International Myotonic Dystrophy Consortium Meeting (IDMC-14) will be held in Nijmegen…

Upcoming Events

13

Dec

2023

Managing RD biological sample data in Biobanks: lessons learned from the EJP RD training workshops

General information This training workshop is the conclusive event of a series of capacity building programs on biobanking put forth by the European Joint Programme on Rare Diseases. The Rare disease (RD) field benefits from…

  • 14:00 - 14:00 (14 December 2023)
  • Milan, Italy
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS