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PRE-ANNOUNCEMENT
Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
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Latest News
International Conference on Clinical Research Networks for Rare Diseases
The International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on…
Report on Health Technology Assessment and reimbursement of rare diseases treatment
IRDiRC is delighted to share the release of Connecting the dots: Embedding progress…
World Duchenne Organization Leadership Award awarded to Professor Francesco Muntoni
The World Duchenne Organization is pleased to announce that the WDO Leadership Award,…
Upcoming Events
27
Sep
2022RDI-WHO Webinar: The International Classification of Diseases
Rare Diseases International is delighted to announce their upcoming webinar on the use of the International Classification of Diseases 11th Revision (ICD -11) for rare diseases. The webinar will be co-hosted by RDI and the…
- 14:00 - 15:00
- Online
29
Sep
2022Comprehensive gene profiling, molecular tumor board (mtb) and artificial intelligence in the diagnosis and treatment of patients with rare adult cancers
All times are in EEST (Eastern European Summer Time) GENERAL INFORMATION Increased knowledge of cancer molecular biology and research methods development has enabled the spread of gene-guided treatment of cancer. In many hospitals Molecular Tumor…
- 09:00 - 16:00 (30 September 2022)
- Turku, Finland