Registration is open for the 2nd run of the first free EJP RD MOOC
"Diagnosing Rare Diseases: from the Clinic to Research and back"
The ERN Research Training Workshops
funding opportunity is NOW OPEN
The application period for the 2022 edition of the EURORDIS
Winter School
has been extended until Friday, 10 September.
Reserve your place for the EJP RD
ERN Workshop 'GATA2-related Myelodysplastic Syndromes"
Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
Latest News
Presentation of EJPRD during IMPC 10th Anniversary Conference: Mouse Genetics and Genomic Medicine
The International Mouse Phenotyping Consortium (IMPC) is organising a virtual conference titled “Mouse…
Two-Day Online Workshop on Covering Rare Diseases
The National Press Foundation is organising a two-day online workshop entitled “Covering Rare…
RWE4Decisions Webinar: Delivering a Health Data Strategy for the European Reference Networks (ERNs)
RWE4Decisions, a multi-stakeholder initiative commissioned by the Belgian National Institute of Health, is…
Upcoming Events
22
Sep
2021Webinar: Leaving the darkness – tackling rare bone diseases
Economist Events and Ipsen are organising a webinar entitled “Leaving the darkness: Tackling rare bone diseases” featuring the participation of clinical specialists, health policy experts and patient groups. The webinar will take place on September 22, 2021 from 17.00 – 18.00 CET. The webinar will discuss…
- 17:00 - 18:00
- Online
23
Sep
2021IMPC 10th Anniversary Conference: Mouse Genetics and Genomic Medicine
The International Mouse Phenotyping Consortium (IMPC) is organising a virtual conference titled “Mouse Genetics and Genomic Medicine” to celebrate the occasion of the 10th anniversary of the establishment of the IMPC. The fully virtual conference will take place over two days on September…
- 14:00 - 23:00 (24 September 2021)
- Online