

READ MORE
Ipsum has been the industry's standard.
Theme For 2018
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READ MORE
Ipsum has been the industry's standard.
Theme For 2018
READ MORE


READ MORE
Ipsum has been the industry's standard.
Theme For 2018
READ MORE
Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
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Free workshops!
For personnel affiliated to institutions of the European Reference Networks
Latest News
Neuropathies Rehabilitation Summer School in Rome
The NEUROPATHIES REHABILITATION SUMMER SCHOOL will take place at Hotel Excel Monte Mario…
New ERN Workshop: CDH1 related hereditary diffuse type gastric cancer: the shift from prophylactic total gastrectomy to optimal endoscopic surveillance
The hereditary tumour syndrome that correlates with a carriership of a pathogenic CDH1 variant is…
New ERN Workshop: Advances in regenerative medicine and tissues engineering for rare musculoskeletal diseases
This workshop aims to improve the knowledge and competences on up-do-date regenerative medicine…
Upcoming Events
04
Jun
2023EJP RD - ERN Workshop on Fetal and Postnatal multidisciplinary management in RD (Myelomeningocele and Lower urinary tract obstruction, LUTO)
ORGANIZERS Giovanni Mosiello, MD, FEAPU, FEBPS, Department of Urology: Neuro- Urology, Bambino Gesù Pediatric and Research Hospital, Rome – Italy; Member of eUROGEN and ITHACA Rafal Chrzan, MD, PhD, FEAPU, Professor and Head of Division…
- 18:00 - 13:00 (6 June 2023)
- Krakow, Poland
07
Jun
2023Duchenne Care Conference 2023
World Duchenne is organising the Duchenne Care Conference 2023. This online conference is taking place on June 7 and 8 from 15:00 – 18:00 CEST. This conference provides a unique opportunity for healthcare professionals and…
- 15:00 - 18:00 (8 June 2023)
- Online