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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
Best Education WordPress
Theme For 2018

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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
Best Education WordPress
Theme For 2018

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Emply dummy text of the printing and typesetting industry orem
Ipsum has been the industry's standard.
Best Education WordPress
Theme For 2018

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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

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Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

Neuropathies Rehabilitation Summer School in Rome

31 May 2023

The NEUROPATHIES REHABILITATION SUMMER SCHOOL will take place at Hotel Excel Monte Mario…

New ERN Workshop: CDH1 related hereditary diffuse type gastric cancer: the shift from prophylactic total gastrectomy to optimal endoscopic surveillance

26 May 2023

The hereditary tumour syndrome that correlates with a carriership of a pathogenic CDH1 variant is…

New ERN Workshop: Advances in regenerative medicine and tissues engineering for rare musculoskeletal diseases

26 May 2023

This workshop aims to improve the knowledge and competences on up-do-date regenerative medicine…

Upcoming Events

04

Jun

2023

EJP RD - ERN Workshop on Fetal and Postnatal multidisciplinary management in RD (Myelomeningocele and Lower urinary tract obstruction, LUTO)

ORGANIZERS Giovanni Mosiello, MD, FEAPU, FEBPS, Department of Urology: Neuro- Urology, Bambino Gesù Pediatric and Research Hospital, Rome – Italy; Member of eUROGEN and ITHACA Rafal Chrzan, MD, PhD, FEAPU, Professor and Head of Division…

  • 18:00 - 13:00 (6 June 2023)
  • Krakow, Poland

07

Jun

2023

Duchenne Care Conference 2023

World Duchenne is organising the Duchenne Care Conference 2023. This online conference is taking place on June 7 and 8 from 15:00 – 18:00 CEST. This conference provides a unique opportunity for healthcare professionals and…

  • 15:00 - 18:00 (8 June 2023)
  • Online
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS