European Joint programme on rare diseases

EJP RD HIGHLIGHTS

Go to EJP RD Information/Networking Event for the internal call for innovation projects in clinical trials methodologies in limited populations applicants

EJP RD Information/Networking Event for the internal call for innovation projects in clinical trials methodologies in limited populations applicants

In the context of the EJP RD internal call for innovation projects in clinical trials methodologies in limited populations, that opened on 7th of December 2020 and will close on 3rd of March 2021, an “Information/Networking Event” will be organized on the 25th of January 2021. The meeting will take place online from 15:00 to 18:30.

Go to EJP RD – Joint Transnational Call 2021 on social sciences and Humanities Research

EJP RD – Joint Transnational Call 2021 on social sciences and Humanities Research

The aim of the call is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear future benefit for patients.

Go to THE COORDINATION TEAM IS HIRING

THE COORDINATION TEAM IS HIRING

The Coordination Team Of EJP RD is searching for Project Manager (junior) and a Coordinator of The Scientific Secretariat of IRDiRC

Go to The Economist Intelligence Units report on rare neurological diseases challenges

The Economist Intelligence Units report on rare neurological diseases challenges

EJP RD member and Coordinator of ERN-RND Holm Graessner , alongside with Mary Kearney from the Irish College of General Practitioners and Primary Care Physician and  Antonio Federico, Professor of Neurology and Director Unit Clinical Neurology and Neurometabolic Diseases in the University of Siena were involved in the production of the Economist Intelligence Unit report entitled “Navigating rare neurological diseases: meeting the challenge for policy makers, patients and healthcare professionals “.

Go to EJP RD – SHORT GUIDE ON PATIENT PARTNERSHIPS IN RARE DISEASES RESEARCH PROJECTS

EJP RD – SHORT GUIDE ON PATIENT PARTNERSHIPS IN RARE DISEASES RESEARCH PROJECTS

The guide aims to encourage fruitful, sustainable and enduring partnerships between scientists and patient organisations, co-leading the way for systematic patient-centered research. Providing definition, examples, testimonials of patient partnerships, describing its benefits, preventing common pitfalls and accompanying applicants, this guide will support applicants to describe the role and added value of patient partnerships in research proposals.

Go to EJP RD – video

EJP RD – video

The NEW EJP RD video is available! What is the EJP RD? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD? Do you want to have all the answers? Then watch the video and subscribe to our NEW EJP RD YouTube channel!

Go to Results of EJP RD Joint Transnational Call (JTC2020)

Results of EJP RD Joint Transnational Call (JTC2020)

In December 2019 the EJP RD launched its second Joint Transnational Call (JTC2020) co-funded with the European Commission to fund multilateral “Pre-Clinical Research to Develop Effective Therapies for Rare Diseases”.

Go to RD-Connect GPAP-Phenostore Webinar

RD-Connect GPAP-Phenostore Webinar

RD-Connect GPAP will present the new module GPAP-Phenostore, used to collect standardised phenotypic information from individuals whose omics data will be analysed. The online Webinar will take place next Thursday 26th November from 15h (CET) to 16h (CET).

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Get in touch with us at coordination(at)ejprarediseases.org