Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
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Latest News
Neuropathies Rehabilitation Summer School in Rome
The NEUROPATHIES REHABILITATION SUMMER SCHOOL will take place at Hotel Excel Monte Mario…
New ERN Workshop: CDH1 related hereditary diffuse type gastric cancer: the shift from prophylactic total gastrectomy to optimal endoscopic surveillance
The hereditary tumour syndrome that correlates with a carriership of a pathogenic CDH1 variant is…
New ERN Workshop: Advances in regenerative medicine and tissues engineering for rare musculoskeletal diseases
This workshop aims to improve the knowledge and competences on up-do-date regenerative medicine…
Upcoming Events
04
Jun
2023EJP RD - ERN Workshop on Fetal and Postnatal multidisciplinary management in RD (Myelomeningocele and Lower urinary tract obstruction, LUTO)
ORGANIZERS Giovanni Mosiello, MD, FEAPU, FEBPS, Department of Urology: Neuro- Urology, Bambino Gesù Pediatric and Research Hospital, Rome – Italy; Member of eUROGEN and ITHACA Rafal Chrzan, MD, PhD, FEAPU, Professor and Head of Division…
- 18:00 - 13:00 (6 June 2023)
- Krakow, Poland
07
Jun
2023Duchenne Care Conference 2023
World Duchenne is organising the Duchenne Care Conference 2023. This online conference is taking place on June 7 and 8 from 15:00 – 18:00 CEST. This conference provides a unique opportunity for healthcare professionals and…
- 15:00 - 18:00 (8 June 2023)
- Online