Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
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Latest News
New EJP RD – ERN Workshop: Desmoid tumors (DTs) in patients with Familial Adenomatous Polyposis (FAP): an interdisciplinary approach
In the context of EJP RD’s ERN Workshops, a workshop entitled “Desmoid tumors (DTs) in patients…
Satisfaction Survey for EJP RD services
The European Joint Programme on Rare Diseases (EJP RD) - Work Package 19 (WP19:…
Training on Strategies to Foster Solutions of Undiagnosed Rare Disease Cases: Registration Open
As part of the training activities proposed by EJP RD, an 3-day training course on “Training…
Upcoming Events
13
Feb
2023TMEX – TRANSLATIONAL MEDICINE EXPLAINED 5 DAY WINTER SCHOOL 2023
Registration is now open to the yearly 5-day course on “Translational Medicine Explained (TMex) ” on 13-17 February 2023 in Barcelona. The course is intended for PhD/MD students, postdocs and other young scientists who are involved in biomedical research…
- 12:00 - 15:00 (17 February 2023)
- Barcelona, Spain
06
Mar
2023Third International Summit on Human Genome Editing
The Third International Summit on Human Genome Editing will take place as an in-person event at the Francis Crick Institute in London over three days from March 6th – 8th, 2023. A multidisciplinary planning committee comprising representatives from eleven nations has been appointed to plan…
- 09:30 - 18:00 (8 March 2023)
- London, United Kingdom