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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

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Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

Join ERDERA as a Project Manager for Rare Diseases

12 juin 2024

ERDERA is excited to announce two career opportunities for experienced professionals passionate about…

New publications: Introducing the DUC Framework and Common Use Condition Elements

4 juin 2024

We proudly announce two ground-breaking publications that help pave the way for the…

European Conference on Rare Diseases Calls for Action in Open Letter to European Commission

3 juin 2024

The European Conference on Rare Diseases and Orphan Products (ECRD) is the largest, patient-led, rare…

Upcoming Events

05

Mar

2025

RE(ACT) Congress and IRDiRC Conference 2025

SAVE THE DATE: Welcome to the pinnacle event in rare diseases research – the RE(ACT) Congress and IRDiRC Conference 2025, held jointly by the BLACKSWAN Foundation and the International Rare Diseases Research Consortium (IRDiRC). From…

  • 09:00 - 17:00 (7 mars 2025)
  • Brussels, Belgium
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS