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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Follow us on social media!

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

New course: Early Phase Trial designs in Rare diseases (VIDEO)

5 April 2024

The video of Alex Sverdlov’s course on “Early Phase Trial designs in Rare…

EJP RD funded projects: Alessandro Prigione Discusses CureMILS project’s work on Leigh Syndrome

27 March 2024

Alessandro Prigione, coordinator of the project CureMILS funded under EJP RD’s Joint Transnational…

Bayesian Methods in Clinical Research: Watch the intermediate course

22 March 2024

We’re thrilled to announce the release of our second intermediate course: “Bayesian Thinking…

Upcoming Events

19

Apr

2024

Interim Analysis, Adaptations and Master Protocols

Description will be updated soon. More information on intermediate courses and Clinical Trials Methodology Watch all the intermediate courses

  • 14:00 - 14:00
  • Youtube

03

May

2024

Key Solutions to Model Longitudinal Natural History  Data Application in Ataxia Disease

Description will be updated soon. More information on intermediate courses and Clinical Trials Methodology Watch all the intermediate courses

  • 14:00 - 14:00
  • Youtube
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS