European Joint programme on rare diseases

EJP RD HIGHLIGHTS

Go to EJP RD – Joint Transnational Call 2020 (JTC2020)

EJP RD – Joint Transnational Call 2020 (JTC2020)

The Preliminary Announcement of the EJP RD JTC2020 is online! Topic is: PRE-CLINICAL RESEARCH TO DEVELOP EFFECTIVE THERAPIES FOR RARE DISEASES. There will be a two-stage submission procedure for joint applications: pre-proposals and full proposals. The call is scheduled to open on December 13, 2019.

Go to ECRD. 15 – 16 May 2020. Stockholm, Sweden.

ECRD. 15 – 16 May 2020. Stockholm, Sweden.

The EJP RD is a full partner of the ECRD event that is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Early registration and abstract submission are open.

Go to RE(ACT) Congress and IRDiRC Conference. 11-14 MARCH 2020, berlin, Germany

RE(ACT) Congress and IRDiRC Conference. 11-14 MARCH 2020, berlin, Germany

EARLY REGISTRATION IS OPEN UNTIL 30 NOVEMBER. Topics will be from “Methodologies to assess the effect of diagnosis and therapies on RD patients” to “Patient engagement in drug development and clinical trial”.

Go to “Yakup’s Journey to Hope” video in collaboration with EJP RD

“Yakup’s Journey to Hope” video in collaboration with EJP RD

Yakup’s Journey to Hope was created in collaboration with EJP RD and GA4GH Driver Project. Dr. Sergi Beltran of EJP RD shares how the driver project has helped one patient receive a diagnosis through international collaboration and data-sharing.

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