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Reserve your place for the free
EJP RD International Summer School on Rare Disease Registries
and FAIRification of Data organised
with Istituto Superiore di Sanità!
30 places available!
Registration is open until 11 July

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Join us!
The EJPRD “Quality assurance, variant interpretation training
and data management in the NGS diagnostics era”
will be held on 27-29 October
30 places available!
Registration is open until 11 July

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EJP RD IS HIRING!
The coordination team is looking for
a Scientific Project Manager for IRDiRC

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This event is open for policy makers and persons involved in national, EU, and international rare diseases strategies.
Registration deadline: July 1st
Strategy Meeting:
Alignment of national rare diseases strategies
with the European Joint Programme on Rare Diseases

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The public consultation is currently accepting inputs as a questionnaire and will close on July 30, 2021
European Commission launches public consultation
on the Orphan and Paediatric Regulations

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The two-day workshop will take place in Leiden, Netherlands from 30 September to 1 October.
Registration is open until 25 June.
Registration is open for the Basics & Beyond Workshop
in clinical epidemiological research for ERNs

Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Latest News

Training Course: Quality assurance, variant interpretation and data management in the NGS diagnostics era

18 June 2021

As part of the training activities proposed by the EJP RD, a 3-day…

International Summer School 2021: Rare Disease Registries and FAIRification of Data

18 June 2021

As part of the training activities proposed by the EJP RD, the International…

Call for research projects: MTFMT gene and Leigh syndrome

18 June 2021

The French Foundation for Rare Diseases (FFRD) in parternship with Association contre les…

Upcoming Events

21

Jun

2021

Resource Webinar: hPSCreg 

Speaker: Nancy Mah  Date: 21st June  Registration link to receive connection details Platform Summary:  The human pluripotent stem cell registry (hPSCreg: https://hpscreg.eu/) maintains a data resource to track the usage of human embryonic and induced pluripotent stem cell lines from research…

  • 15:00 - 16:00
  • Online

23

Jun

2021

European Research and Innovation Days 2021

The European Commission (EC) is organising its annual flagship Research and Innovation event, titled “European Research and Innovation Days 2021”, bringing together policymakers, researchers, entrepreneurs and the public to debate and shape the future of research and innovation in Europe and beyond. The online event will take place over two days from June…

  • 09:00 - 18:00 (24 June 2021)
  • Online
35
COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS