EJP RD HIGHLIGHTS
EJP RD – Joint Transnational Call 2020 (JTC2020)
The EJP RD JTC2020 topic is: PRE-CLINICAL RESEARCH TO DEVELOP EFFECTIVE THERAPIES FOR RARE DISEASES. There will be a two-stage submission procedure for joint applications: pre-proposals and full proposals. The EJP RD – JTC2020 is officially closed.
EJP RD Internal Call for Proposals – Clinical Trials Methodology Demonstration Projects
The Clinical Trials Methodology Demonstration Projects Call is OPEN! It aims to show the usability and capability of the innovative statistical methodologies for clinical trials in rare diseases, which have not been demonstrated on existing data for specific rare disease clinical trials yet.
EJP RD Internal call – ERN RD training and support program
The Research Mobility Fellowship and Research Training Workshops calls are OPEN! Financial supports to PhD students and medical doctors working in ERN-member institutions for short scientific visits and/or to organize a 2-days workshop targeted to the ERNs needs are available.
EJP RD – RDR Challenges Call – NETWORKING EVENT ANNOUNCEMENT
The registration for the RDR Challenges Networking Event is OPEN! Deadline is 6 Feb 2020 at MIDNIGHT, 100 participants max. Academia, clinical/public health sector, SMEs, and rare disease patient representatives can apply. The aim is facilitate collaborations between stakeholders that will apply to the call.
EJP RD – Networking Support Scheme
Networking Support Scheme (NSS) is OPEN! Health care professionals, researchers and patient advocacy organizations can apply to organize workshops or conferences on rare diseases and rare cancers. The focus of these events should be research results and innovative solutions. Open on a continuous basis. First collection date for evaluation is March 3, 2020 at 14:00 (CET)
Funded Projects. Results of EJP RD Joint Transnational Call (JTC2019)
The list of first EJP RD – JTC2019 funded projects is ONLINE! Title of this call was “Research projects to accelerate diagnosis and/or explore disease progression and mechanisms of rare diseases”.
RE(ACT) Congress and IRDiRC Conference. 11-14 MARCH 2020, berlin, Germany
REGISTRATION: SPECIAL RATES FOR EJP RD & IRDiRC MEMBERS! Topics will be from “Methodologies to assess the effect of diagnosis and therapies on RD patients” to “Patient engagement in drug development and clinical trial”. Deadline for Standard Registration is 21 February.Free registration to students from Berlin institutions/universities will also be offered!
International course: Training on strategies to foster solutions of undiagnosed rare disease cases
27 – 29 April 2020. Istituto Superiore di Sanità, Rome, Italy Registration for the reserve list is still open, deadline 24 Feb! The course will provide participants (30 max) with useful examples for the resolution of undiagnosed cases. It is free of charge.
To mark the occasion of Rare Disease Day 2020, EURORDIS – Rare Diseases Europe holds a policy event at the European Parliament to “Reframe Rare” and discuss areas of action at EU level that can contribute to the integration of people living with a rare disease into society and improve their lives. The idea to Read more about Reframe Rare: A Rare Disease Day Policy Event[…]
Today is the day: The 9th edition of the Eurordis Black Pearl Awards event is just a couple of hours away! The EURORDIS Black Pearl Awards is an annual awards ceremony which takes place in Brussels in February to launch the month of Rare Disease Day. Since 2012, EURORDIS-Rare Diseases Europe has organized this event to Read more about EURORDIS Black Pearl Awards 2020[…]
Specialised phenotyping: Mutant mice under inflammatory disease conditions Context and aims of the call In the INFRAFRONTIER2020 specialised phenotyping program, INFRAFRONTIER partner institutions offer the in depth characterisation of mouse mutants for interested biomedical researchers all around the globe – free of charge concerning scientific service and expertise. In this TA call, the Greek INFRAFRONTIER Read more about INFRAFRONTIER2020 Project – Trans-national Access call February 2020[…]
The Helis Academy course will cover the basics of biological pathways and pathway analysis as well as network biology and network analysis. The next edition of the Helis Academy Omics Data Analysis course will take place at Maastricht University on 30-31 March, 2020. The course is free, registration closes on 20 March. The target audience Read more about Helis Academy Omics Data Analysis Course[…]
On 11 February 2020, International Day of Women and Girls in Science, Commissioner Gabriel launched the 7th edition of the EU Prize for Women Innovators. Applications are now open until Tuesday 21 April at 17:00 CET (Brussels time). If you think you have what it takes to become the next EU Woman Innovator, don’t miss Read more about EU Prize for Women Innovators 2020[…]
The Alliance of International Developers for Rare Diseases (AIDRD) Hackathon 2020 will be held from March 9th through 12th, 2020 in Kashiwa, Japan (1 hour train from Tokyo). The focus of this hackathon is bringing together developers from around the world to help address three key challenges for rare disease diagnosis: The use and interoperability of rare Read more about AIDRD Hackathon 2020[…]
Dr. Daria Julkowska joined the podcast show on DNA Radio for Rare Disease Month to present the EJP RD consortium and its initiatives and activities. The podcast is part of the DNA Today Discover New Advances in the world of genetics… On this episode the discussion is around: Motivation to Start the Organization Goals for the Read more about EJP RD Coordinator Dr. Daria Julkowska podcast on DNA Radio is online[…]
“Rare Diseases”: This research and innovation partnership would aim to improve the lives of rare diseases patients. It would built on the results and experiences the ERA-Net E-Rare which was continued in the frame of the European Joint Programme on Rare Diseases (EJP RD). The EJP RDhas been launched in December 2018 to further help Read more about “Orientations towards the first Strategic Plan for Horizon Europe” document: EJP RD is mentioned![…]
The ELIXIR Bioinformatics Industry Forum brings together technical specialists and academics to discuss visionary ideas, bottlenecks and solutions to some of the major challenges in the data driven life science sector. This year’s speakers include a mix from software providers, funders and academics such as Amazon Web Services, Google, the University of Oxford, and the Chan Zuckerberg Initiative. The Read more about Join ELIXIR at the next Bioinformatics Industry Forum[…]
Submit an oral presentation or an abstract of your research at the “European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy” on May 28 – 29 2020, in Dijon (France) organised by the Health Economics Team of the Economics Laboratory of Dijon, University of Burgundy. This conference aims to contribute to the development of research Read more about European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy[…]