NOW OPEN
PRE-ANNOUNCEMENT
Welcome to EJP RD
The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.
Follow us on social media!
Latest News
Report on Health Technology Assessment and reimbursement of rare diseases treatment
IRDiRC is delighted to share the release of Connecting the dots: Embedding progress…
World Duchenne Organization Leadership Award awarded to Professor Francesco Muntoni
The World Duchenne Organization is pleased to announce that the WDO Leadership Award,…
ECRIN NSS Meeting: Identifying obstacles hindering the development of academic-sponsored trials for drug repurposing on rare-diseases
As a continuation of the funding of an EJP RD NSS call, ECRIN…
Upcoming Events
26
Sep
2022International Summer School on Rare Disease Registries and FAIRification of data
REGISTRATION IS NOW OPEN HERE until the 29th of May 2022. IMPORTANT INFORMATIONThe training course will be held in an ONLINE FORMAT, given the uncertainties linked to the evolution of the Covid-19 pandemic and to the international situation.…
- 13:30 - 17:10 (30 September 2022)
- Online
27
Sep
2022RDI-WHO Webinar: The International Classification of Diseases
Rare Diseases International is delighted to announce their upcoming webinar on the use of the International Classification of Diseases 11th Revision (ICD -11) for rare diseases. The webinar will be co-hosted by RDI and the…
- 14:00 - 15:00
- Online