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Welcome to EJP RD

The European Joint Programme on Rare Diseases (EJP RD) is a programme aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease. We support rare diseases stakeholders by funding research, bringing together data resources & tools, providing dedicated training courses, and translating high quality research into effective treatments.

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Watch Our Introduction Video

What is the European Joint Programme on Rare Diseases? How EJP RD works? What kind of support EJP RD provides? How to contact EJP RD?

Free workshops!

For personnel affiliated to institutions of the European Reference Networks

Latest News

Report on Health Technology Assessment and reimbursement of rare diseases treatment

23 September 2022

IRDiRC is delighted to share the release of Connecting the dots: Embedding progress…

World Duchenne Organization Leadership Award awarded to Professor Francesco Muntoni

22 September 2022

The World Duchenne Organization is pleased to announce that the WDO Leadership Award,…

Upcoming Events

26

Sep

2022

International Summer School on Rare Disease Registries and FAIRification of data

REGISTRATION IS NOW OPEN HERE until the 29th of May 2022. IMPORTANT INFORMATIONThe training course will be held in an ONLINE FORMAT, given the uncertainties linked to the evolution of the Covid-19 pandemic and to the international situation.…

  • 13:30 - 17:10 (30 September 2022)
  • Online

27

Sep

2022

RDI-WHO Webinar: The International Classification of Diseases

Rare Diseases International is delighted to announce their upcoming webinar on the use of the International Classification of Diseases 11th Revision (ICD -11) for rare diseases. The webinar will be co-hosted by RDI and the…

  • 14:00 - 15:00
  • Online
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COUNTRIES
130
INSTITUTIONS
24
ERNs
1200
SCIENTISTS AND ADMINS