The Duchenne Data Foundation, in collaboration with the World Duchenne Organization, is launching the 2021 edition of the Duchenne Patient Academy (DPA). In this intensive training session, patient advocates receive training and updates to build a strong base for current and future global advocacy. Applications are now open here.
Duchenne Patient Academy works in partnership with leading DMD patient organizations to set
a solid patient advocacy base for the Duchenne and Becker MD community. Through connecting leading experts in their fields, DPA aims to contribute a collective and strong voice to coordinate the global advocacy strategy. The previous edition of the Duchenne Patient Academy convened with over 120 participants from 52 countries.
Driving research and better care
Participants of the Duchenne Patient Academy develop a deeper understanding of the research, drug development, regulatory, policy and global frameworks in the DMD/BMD community that define best practices of international advocacy to drive research and care.
Details
From Tuesday November 30 to Saturday December 4, the Duchenne Patient Academy will consist of 2,5-hour webinars during the week (18:00 – 20:30 CET), with a 4-hour training session on Saturday (15:00 – 19:00 CET). The final agenda, consisting of expert speaker presentations and interactive sessions, will be sent to the participants.
Application process
Application for Duchenne Patient Academy 2021 closes on November 9. Applicants can expect to receive a reply by mid-November.
Requirements
• Attendees are required to attend all webinars, and read the preparatory materials.
• Estimated time commitment is 17 hours for preparation and participating in the sessions.
• A good knowledge of English and a strong commitment is essential to participate in the training
and discussions.