The Chan Zuckerberg Initiative (CZI) is inviting applications from collaborative teams bringing together patient-led rare disease organisations and research teams for 4-year research projects aimed at […]
Read MoreThe Ehlers-Danlos Society is organising the International Scientific Symposium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD), a state-of-the-art meeting in […]
Read MoreIn October 2021, the European Medicines Agency (EMA) and the Heads of Medicines Agencies (HMA) announced a pilot project to support the repurposing of medicines. […]
Read MoreThe Dravet Syndrome Foundation Spain (FSD), a non-profit organisation that promotes, encourages, and connects the world’s leading research centers for Dravet syndrome and […]
Read MoreOrganized by the Rare Skin Diseases Network of the René Touraine Foundation, in association with ERN SKIN, the 1st World Congress on Rare […]
Read MoreEuronews has gathered a panel of experts, industry leaders and key players in Brussels to address the issue of how rare disease provision […]
Read MoreThe European Paediatric Translational Research Infrastructure (EPTRI) is organising a webinar tailored to the development of medical devices (MD), titled “A […]
Read MoreA funded networking event on vascular liver diseases and associated complications is being organised to give an update on current clinical and scientific […]
Read MoreThe European Medicines Agency (EMA) is organising a virtual event on “Research in regulatory science – addressing the needs” to inform the public and stakeholders about […]
Read MoreEJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and the Joint Research […]
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