Dravet Syndrome Foundation Scientific and Family Days 2022

  • 31 mars 2022 - 08:30
  • Madrid, Spain

The Dravet Syndrome Foundation Spain (FSD), a non-profit organisation that promotes, encourages, and connects the world’s leading research centers for Dravet syndrome and related diseases, is announcing its upcoming conferences taking place in 2022, whose registration is now open at www.dravetconference.com.

These in-person events will take place in Madrid, Spain over three days from March 31st – April 2nd.

1. Dravet Syndrome Conference 2022 – March 31st

This international conference brings together a range of professionals from all over the world committed to improving the lives of people with epilepsy, including clinicians, investigators and professionals from the pharmaceutical industry. Running in English, this event aims to update professionals on diagnosis, management, available treatments, and therapies in development and to create an ideal platform for discussion and exchange.

2. European Dravet Syndrome Advanced Therapies (EDSAT) 2022 – April 1st

Scientists will share their most recent advances in Advanced Therapy Medicinal Products (ATMPs) for Dravet syndrome, and they will learn from and discuss with key researchers, industry, and clinical and regulatory experts in product development. This European scientific workshop will be conducted in English and has received partial funding from the EJP RD.

3. FSD Family Meeting 2022 – April 2nd

This meeting brings together Dravet syndrome patients and their families from all over Spain. It provides an excellent opportunity for families to exchange their experiences, concerns, queries and hopes with other families and health and social care providers. It also provides them with first-hand information about the progress made by DSFS and the most recent advances in Dravet research, as well as some of the most relevant social developments. This meeting will be in Spanish.

For more information: https://dravetfoundation.eu/jornadas-cientificas-y-familiares-2022/