As part of Solve-RD, Solving the unsolved rare diseases, a European project H2020 on genetic research, the Health Economics Team of the […]
Read MoreRegistration are open until 30 April 2021 (deadline for Early Bird registration) Abstract Submission are open until 31 March 2021 […]
Read MoreRegister here Example Disease: Friedreich’s ataxia Presenters: Amanda Borens, MSc, Executive Director, Data Science, DCC; Vicki Theurer Crider, Sr. Project Manager, DCC; Kurt Michels, […]
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Heritable human genome editing has been proposed as a means of helping parents avoid passing genetic diseases to future generations. […]
Read More1- 2 March 2021 ONLINE The 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access” recognises […]
Read MoreMarch 10-12, 2021- online event Neuroacanthocytosis syndromes (NA) are a group of rare, but devastating, neurodegenerative disorders, with Chorea Acanthocytosis […]
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Pr. Gert Matthijs, partner of EJP RD, is part of the Scientific Programme Committee of this year’s Curating the Clinical […]
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