We are happy to invite you to take part in a workshop addressing “Ethics and regulatory considerations for ERN Data Access […]
Read MoreA funded networking event “European meeting on Phelan-McDermid syndrome” is being organised to discuss the guideline recommendations and to strengthen the […]
Read MoreA funded networking event “2nd International Congress on Biliary Atresia and Related Diseases (BARD)” is being organised to offer access […]
Read MoreA funded networking event “3rd International Symposium for Researchers and Clinicians on Wiskott Aldrich Syndrome (WAS2022)” is being organised to […]
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The ProDGNE consortium is organising the ProDGNE Meeting 2022, a multi-stakeholder opportunity to meet in person, discuss impactful research in GNE Myopathy (GNEM) and […]
Read MoreGENERAL INFORMATION Rare disease (RD) is one area where national and international multidisciplinary collaborations are valuable to overcome some of […]
Read MoreA funded networking event “Regional Cooperation: Conference on new concepts and approaches in lymphoma” is being organised in Belgrade, Serbia […]
Read MoreFamilial Adult Myoclonic Epilepsy (FAME) is a rare genetic condition, characterized by the occurrence of cortical tremor, myoclonus, and generalized […]
Read MoreA funded networking event “The AKU Scientific Conference” is being organised. This event has received funding support from the EJP […]
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A funded networking event “Treat AIE: First European networking conference to provide guidelines and improve treatment of Autoimmune Encephalitis” is […]
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