GENERAL INFORMATION ConceptPrecision medicine is an emerging approach to clinical research and patient care based on patient-individual medical data, genetic, […]
Read MoreGENERAL INFORMATION Concept After more than 20 years of Hereditary breast and ovarian cancer (HBOC) research in Latvia it has […]
Read MoreGENERAL INFORMATION ConceptThe normal functioning of the brain and the central nervous system is protected by the blood-brain barrier (BBB), […]
Read MoreREGISTRATION IS NOW OPEN here until 15 February, 2023. Registration will remain open for the reserve list only until 2 March […]
Read MoreGeneral Information Concept and aimDT is defined as a rare benign monoclonal fibroblastic proliferation that arises in soft tissue. They […]
Read MoreGENERAL INFORMATION Psychosocial needs play an important role in rare diseases. There are common burdensome and stressful events that many […]
Read MoreGENERAL INFORMATION ConceptInherited retinal dystrophies (IRDs) constitute a heterogeneous group of retinal diseases that cause the progressive loss of vision. […]
Read MoreGENERAL INFORMATION Concept: Epidermolysis bullosa (EB) is a group of genetic disorders that manifest with fragility of the skin and […]
Read MoreFondazione Gianni Benzi Onlus is jointly organising with Università degli Studi di Bari Aldo Moro the XV Foresight Training Course […]
Read MoreGENERAL INFORMATION Through the last decade access to modern healthcare has improved significantly. The lack of scientific knowledge about rare […]
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