The ProDGNE consortium is organising the ProDGNE Meeting 2022, a multi-stakeholder opportunity to meet in person, discuss impactful research in GNE Myopathy (GNEM) and […]
Read MoreGENERAL INFORMATION Rare disease (RD) is one area where national and international multidisciplinary collaborations are valuable to overcome some of […]
Read MoreA funded networking event “Regional Cooperation: Conference on new concepts and approaches in lymphoma” is being organised in Belgrade, Serbia […]
Read MoreFamilial Adult Myoclonic Epilepsy (FAME) is a rare genetic condition, characterized by the occurrence of cortical tremor, myoclonus, and generalized […]
Read MoreA funded networking event “The AKU Scientific Conference” is being organised. This event has received funding support from the EJP […]
Read MoreA funded networking event “Treat AIE: First European networking conference to provide guidelines and improve treatment of Autoimmune Encephalitis” is […]
Read MoreA funded networking event “European Forum on Visceral Myopathy 2022” is being organised in Camogli, Italy.This event has received funding […]
Read MoreA funded networking event “European Forum on Visceral Myopathy 2022” is being organised. This event has received funding support from […]
Read MoreGENERAL INFORMATION When assessing the efficacy of a treatment in any clinical trial, it is recommended by the International Council […]
Read MoreRegistration has been extended until 20 May 2022 -12hCEST GENERAL INFORMATION ConceptCardiomyopathies and channelopathies are severe and misunderstood diseases that […]
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