EJP RD is pleased to announce that the next edition of the 7th RE(ACT) Congress and 5th IRDiRC Conference will be held in […]
Read MoreGENERAL INFORMATION ConceptIn order to promote the engagement of young investigators into Primary Sclerosing Cholangitis (PSC) research and to strengthen […]
Read MoreThe European Rare Disease Research Coordination and Support Action consortium (ERICA) is organising the WP4 Clinical Trial Support webinar “Essential requirements before […]
Read MoreGENERAL INFORMATION ConceptPrecision medicine is an emerging approach to clinical research and patient care based on patient-individual medical data, genetic, […]
Read MoreGENERAL INFORMATION ConceptAfter more than 20 years of Hereditary breast and ovarian cancer (HBOC) research in Latvia it has been […]
Read MoreGENERAL INFORMATION ConceptThe normal functioning of the brain and the central nervous system is protected by the blood-brain barrier (BBB), […]
Read MoreRegistration is now open here for the reserve list only until 2 March 2023.An e-mail will be sent by 3 March 2023 […]
Read MoreGeneral Information Concept and aimDT is defined as a rare benign monoclonal fibroblastic proliferation that arises in soft tissue. They […]
Read MoreGENERAL INFORMATION Psychosocial needs play an important role in rare diseases. There are common burdensome and stressful events that many […]
Read MoreGENERAL INFORMATION ConceptInherited retinal dystrophies (IRDs) constitute a heterogeneous group of retinal diseases that cause the progressive loss of vision. […]
Read More