EURORDIS webinar: “How to use results of data sharing survey”

Take part in an interactive webinar to discuss the results of the first large scale quantitative survey on patients’ preferences in data protection/ sharing and how you can use the results in your advocacy.  This interactive webinar will be led by with Sandra Courbier, Rare Barometer leader and Virginie-Bros Facer, EURORDIS Research Director, the agenda Read more about EURORDIS webinar: “How to use results of data sharing survey”[…]

ERN webinar: “Clinical Features of Ataxia by Dr. Bart van de Warrenburg”

Joint webinar series by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN) on 5 November 2019 at 3 pm CET. The speaker is Dr. Bart van de Warrenburg, a neurologist from the Radboud University Medical Centre in Nijmegen, the Netherlands. He is an Read more about ERN webinar: “Clinical Features of Ataxia by Dr. Bart van de Warrenburg”[…]