EURORDIS webinar: “How to use results of data sharing survey”

Take part in an interactive webinar to discuss the results of the first large scale quantitative survey on patients’ preferences in data protection/ sharing and how you can use the results in your advocacy.  This interactive webinar will be led by with Sandra Courbier, Rare Barometer leader and Virginie-Bros Facer, EURORDIS Research Director, the agenda is the following:
1. Presentation of the results and the derived recommendations
2. Discussion on how you can use the results of the survey in your advocacy
3. Concrete outcome: finalisation of a factsheet

 Register for the webinar, which will take place on 10 October at 16h00 Paris time. Contact sandra.courbier(at) with any questions.