Take part in an interactive webinar to discuss the results of the first large scale quantitative survey on patients’ preferences in data protection/ sharing and how you can use the results in your advocacy. This interactive webinar will be led by with Sandra Courbier, Rare Barometer leader and Virginie-Bros Facer, EURORDIS Research Director, the agenda is the following:
1. Presentation of the results and the derived recommendations
2. Discussion on how you can use the results of the survey in your advocacy
3. Concrete outcome: finalisation of a factsheet
Register for the webinar, which will take place on 10 October at 16h00 Paris time. Contact sandra.courbier(at)eurordis.org with any questions.